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dc.contributor.authorLupton, Deborah
dc.date.accessioned2013-05-04
dc.date.available2013-05-04
dc.date.issued2013-05-04
dc.identifier.urihttp://hdl.handle.net/2123/9063
dc.description.abstractAs part of the digital health phenomenon, a plethora of interactive digital platforms have been established in recent years to elicit lay people’s experiences of illness and healthcare. The function of these platforms, as expressed on the main pages of their websites, is to provide the tools and forums whereby patients and caregivers, and in some cases medical practitioners, can share their experiences with others, benefit from the support and knowledge of other contributors and contribute to large aggregated data archives as part of developing better medical treatments and services and conducting medical research. However what may not always be readily apparent to the users of these platforms are the growing commercial uses by many of the platforms’ owners of the archives of the data they contribute. This article examines this phenomenon of what I term ‘the digital patient experience economy’. In so doing I discuss such aspects as prosumption, the phenomena of big data and metric assemblages, the discourse and ethic of sharing and the commercialisation of affective labour via such platforms. I argue that via these online platforms patients’ opinions and experiences may be expressed in more diverse and accessible forums than ever before, but simultaneously they have become exploited in novel ways.en_AU
dc.language.isoen_AUen_AU
dc.publisherThe Sydney Health & Society Groupen_AU
dc.relation.ispartofseriesSydney Health & Social Group Working Papersen_AU
dc.relation.ispartofseries3en_AU
dc.subjectdigital healthen_AU
dc.subjectpatient opinion websitesen_AU
dc.subjectsocial mediaen_AU
dc.subjectbig dataen_AU
dc.subjectprosumptionen_AU
dc.subjecthealthcareen_AU
dc.subjectsociologyen_AU
dc.subjectdigital mediaen_AU
dc.titleThe Commodification of Patient Opinion: the Digital Patient Experience Economy in the Age of Big Dataen_AU
dc.typeWorking Paperen_AU
dc.contributor.departmentDepartment of Sociology and Social Policyen_AU


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