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NHMRC Clinical Trials Centre: Recent submissions

    • Supportive Care: Economic Considerations in Advanced Kidney Disease 

      Morton, Rachael L.; Kurella Tamura, Manjula; Coast, Joanna; Davison, Sara N.
      Published 2016
      Kidney supportive care describes multiple interventions for patients with advanced CKD that focus on improving the quality of life and addressing what matters most to patients. This includes shared decision making and ...
      Open Access
      Article
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    • How to routinely collect data on patient-reported outcome and experience measures in renal registries in Europe: an expert consensus meeting 

      Breckenridge, Kate; Bekker, Hillary L.; Gibbons, Elizabeth; van der Veer, Sabine N.; Abbott, Denise; Briançon, Serge; Cullen, Ron; Garneata, Liliana; Jager, Kitty J.; Lønning, Kjersti; Metcalfe, Wendy; Morton, Rachael L.; Murtagh, Fliss E.M.; Prutz, Karl; Robertson, Susan; Rychlik, Ivan; Schon, Steffan; Sharp, Linda; Speyer, Elodie; Tentori, Francesca; Caskey, Fergus J.
      Published 2015
      Despite the potential for patient-reported outcome measures (PROMs) and experience measures (PREMs) to enhance understanding of patient experiences and outcomes they have not, to date, been widely incorporated into renal ...
      Article
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    • Psychoeducational Intervention to Reduce Fear of Cancer Recurrence in People at High Risk of Developing Another Primary Melanoma: Results of a Randomized Controlled Trial 

      Dieng, Mbathio; Butow, Phyllis N.; Costa, Daniel S.J.; Morton, Rachael L.; Menzies, Scott W.; Mireskandari, Shab; Tesson, Stephanie; Mann, Graham J.; Cust, Anne E.; Kasparian, Nadine A.
      Published 2016
      Purpose People with a history of melanoma commonly report a fear of cancer recurrence (FCR), yet psychologic support is not routinely offered as part of ongoing melanoma care. This randomized controlled trial examined ...
      Article
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    • Measuring trade-offs in nephrology: a systematic review of discrete choice experiments and conjoint analysis studies 

      Clark, Michael D.; Szczepura, Ala; Gumber, Anil; Howard, Kirsten; Moro, Domenico; Morton, Rachael L.
      Published 2017
      Background Discrete choice experiment (DCE), conjoint analysis or adaptive conjoint analysis methods are increasingly applied to obtain patient, clinician or community preferences in nephrology. This study systematically ...
      Article
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    • The impact of social disadvantage in moderate-to-severe chronic kidney disease: an equity-focused systematic review 

      Morton, Rachael Lisa; Schlackow, Iryna; Mihaylova, Borislava; Staplin, Natalie Dawn; Gray, Alastair; Cass, Alan
      Published 2016
      It is unclear whether a social gradient in health outcomes exists for people with moderate-to-severe chronic kidney disease (CKD). We critically review the literature for evidence of social gradients in health and ...
      Open Access
      Article
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