Sydney Health Ethics: Recent submissions
-
Ethics and Epistemology in Big Data Research
Published 2017-01-01Biomedical innovation and translation are increasingly emphasizing research using “big data”. The hope is that big data methods will both speed up research and make its results more applicable to “real-world” patients and ...Open AccessArticle -
Caution needed in introduction of provisional approvals for medicines
Published 2017-01-01The Australian government recently released its response to the Review of Medicines and Medical Devices Regulation, accepting most recommendations. One recommendation involves the introduction of provisional approvals for ...Open AccessArticle -
A will and a way to fund medicines for rare diseases: the story of human growth hormone replacement for adults with growth hormone deficiency.
Published 2018-08-07Growth hormone (GH) replacement therapy was recently recommended by the Pharmaceutical Benefits Advisory Committee (PBAC) for listing on the Pharmaceutical Benefits Scheme for adults with severe GH deficiency and impaired ...Open AccessArticle -
Bulldust, flat tyres and roadkill: a disorderly decolonising fieldwork journey through remote Aboriginal and Torres Strait Islander Australia
Published 2017-12-01The purpose of this paper is to discuss the iterations and outcomes of a doctoral fieldwork experience where the Aboriginal and Torres Strait Islander participants challenged me to radically adapt my constructivist grounded ...Open AccessArticle