Sydney Health Ethics: Recent submissions
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Knowledge, Beliefs, and Decisions of Pregnant Australian Women Concerning Donation and Storage of Umbilical Cord Blood: A Population‐Based Survey
Published 2014-01-01Background: Many women giving birth in Australian hospitals can choose to donate their child’s umbilical cord blood to a public cord blood bank or pay to store it privately. We conducted a survey to determine the proportion ...Open AccessArticle -
The Many Faces of Risk: A Qualitative Study of Risk in Outpatient Involuntary Treatment.
Published 2015-01-01Objective: This study aimed to derive a conceptualisation of risk in outpatient involuntary psychiatric treatment that has utility and meaning for stakeholders. Methods: Thirty-eight participants –patients, caregivers, ...Open AccessArticle -
The management of children with Spinal Muscular Atrophy Type 1 in Australia
Published 2013-01-01Aims: To (1) estimate the prevalence of Spinal Muscular Atrophy Type 1 (SMA 1); (2) describe what practices characterise end-of-life care of patients with SMA 1; (3) ascertain whether a consistent approach to the management ...Open AccessArticle -
Oversight for clinical uses of autologous adult stem cells: lessons from international regulations
Published 2013-01-01Autologous adult stem cells (ASCs) are being administered by physicians for indications that have not been demonstrated as safe and effective in formal clinical trials. Examination of regulatory frameworks across five ...Open AccessArticle -
Understanding selective refusal of eye donation: identity, beauty and interpersonal relationships.
Published 2013-01-01Corneal transplantation is the most common form of organ transplantation performed globally. However, of all organs, eyes have the highest rate of refusal of donation. This study explored the reasons why individuals decide ...Open AccessArticle