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dc.contributor.authorLewis, P
dc.contributor.authorMooney-Somers, Julie
dc.contributor.authorJordens, C
dc.contributor.authorKerridge, I
dc.date.accessioned2015-02-09
dc.date.available2015-02-09
dc.date.issued2014-01-01
dc.identifier.citationLewis, P., Mooney-Somers, J., Jordens, C. C., & Kerridge, I. (2014). Parents as Advocates for the Psychosocial Survival of Adolescents and Young Adults with Cancer. Journal of Child and Family Studies, 1-10. doi: 10.1007/s10826-013-9896-x; published online: 10 Jan 14en_AU
dc.identifier.urihttp://hdl.handle.net/2123/12710
dc.description.abstractMany young people with cancer have a parent or parents who care for them during their hospitalisation and treatment, and remain an important part of their lives after the ‘crisis’ has passed and young people have moved into survivorship. This qualitative study explored the impact of cancer diagnosis, treatment and survival during adolescence and young adulthood on the practice and experiences of parenting. We conducted focus groups with a total of 22 parents of young people diagnosed with various cancers between the ages of 11 and 19 years old. The results indicated that parents advocated for their offspring in different ways at different points of the cancer journey. Parents used their parental knowledge of their offspring to secure a medical diagnosis and treatment, developed medical knowledge to advocate for appropriate treatment within the medical system, and then used parental and medical knowledge to advocate for their offspring’s successful psychosocial survival. In this final point in the journey, parents entered social worlds from which they would normally be absent and some went to great lengths to ensure their offspring were not socially disadvantaged. Key Words: Adolescent, Young Adult, Parent, Canceren_AU
dc.description.sponsorshipAustralian Research Council's Linkage Projects funding scheme (project number LP0883632)en_AU
dc.language.isoen_AUen_AU
dc.publisherSpringeren_AU
dc.titleParents as Advocates for the Psychosocial Survival of Adolescents and Young Adults with Canceren_AU
dc.typeArticleen_AU
dc.type.pubtypePost-printen_AU


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