Communication of genetic information within families: the case for familial comity

Davey, A; Newson, A.J.; O’Leary, P

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Open Access

Field	Value	Language
dc.contributor.author	Davey, A
dc.contributor.author	Newson, A.J.
dc.contributor.author	O’Leary, P
dc.date.accessioned	2015-02-02
dc.date.available	2015-02-02
dc.date.issued	2006-01-01
dc.identifier.citation	Davey, A. Newson, A.J. O’Leary, P. (2006) “Communication of genetic information within families: the case for familial comity.” Journal of Bioethical Inquiry, 3(3): 161-6.	en
dc.identifier.uri	http://hdl.handle.net/2123/12675
dc.description.abstract	Advances in genetic technologies raise a multitude of ethical issues, some of which give rise to novel dilemmas for medical practice. One of the most controversial problems arising in clinical genetics is that of confidentiality and who may disclose genetic health information. This paper considers the question of when it is appropriate for health professionals to disclose clinically significant genetic information without patient consent. Existing ethical principles offer little guidance in relation to this issue. We build on suggestions that genetic information may be viewed as collective or shared information, and we introduce the concept of ‘familial comity’ as a fresh way to consider the issues. Keywords: Genetics, Ethics, clinical, Confidentiality, Family, Genetic privacy	en
dc.description.sponsorship	This article was written by Dr Ainsley Newson during the time of her employment with the University of Bristol, UK (2006-2012). Self-archived in the Sydney eScholarship Repository with permission of Bristol University, Sept 2014.	en
dc.language.iso	en	en
dc.publisher	Springer	en
dc.rights	Other
dc.title	Communication of genetic information within families: the case for familial comity	en
dc.type	Article	en
dc.type.pubtype	Author accepted manuscript	en
usyd.faculty	Faculty of Medicine and Health, Sydney Health Ethics