Personal genomics as an interactive web broadcast

Abstract

Personal genomics and whole-genome sequencing are rapidly becoming established on the spectrum of genomic research and service provision. It appears that we do in fact possess curiosity about our genomes, enough to prompt many to purchase DTC testing and more to consider it. McGuire and colleagues' study (2009) and Lee and Crawley's reflection (2009) provide a useful snapshot of emerging issues in personal genomics. Yet the momentum of these technologies suggests we need to act quickly in deliberating their implications. This commentary will draw out and provide some initial reflection on some of the key ethical issues arising in DTC genomics. This will incorporate an analysis of an online personal genomics broadcast that has recently taken place in the United Kingdom: the Routes Game. Additionally, a claim is advanced that further empirical reflection on DTC genomics should rest on a strong theoretical ethical foundation.