Research Publications and Outputs: Recent submissions
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Rhetoric, power and legitimacy: A critical analysis of the public policy disputes surrounding stem cell research in Australia (2005-6).
Published 2012-01-01In December 2006, the Australian Parliament liberalized regulation governing stem cell research. This decision and preceding legislative review generated considerable public debate, which centred on objections to the ...Open AccessArticle -
Uncertain Translation, Uncertain Benefit and Uncertain Risk: Ethical Challenges Facing First-in-Human Trials of Induced Pluripotent Stem (iPS) Cells
Published 2013-01-01The discovery of induced pluripotent stem (iPS) cells in 2006 was heralded as a major breakthrough in stem cell research. Since then, progress in iPS cell technology has paved the way towards clinical application, particularly ...Open AccessArticle -
The management of children with Spinal Muscular Atrophy Type 1 in Australia
Published 2013-01-01Aims: To (1) estimate the prevalence of Spinal Muscular Atrophy Type 1 (SMA 1); (2) describe what practices characterise end-of-life care of patients with SMA 1; (3) ascertain whether a consistent approach to the management ...Open AccessArticle -
Independent therapeutic advice: How achievable is it?
Published 2013-01-01This supplement is likely to be of interest to anyone involved in the development of clinical guidelines and clinical research, including: • health professionals, trainees and students who use guidelines as a basis for ...Open AccessArticle -
Rethinking pediatric ethics consultations
Published 2015-01-01Johnson and colleagues (2015) report a retrospective review of the experience of an ethics consultation service at a single, highly specialized children's hospital over an 11-year period. Despite its methodologic limitations, ...Open AccessArticle