Face to face: Philosophy and impacts of socially engaged art with patients at the Sydney Facial Nerve Clinic

Abstract

Aim This research aims to understand the impact of embedding responsive, experimental arts practice in the multidisciplinary Sydney Facial Nerve Clinic which treats patients with facial nerve paralysis. Consequently, this research aims to develop a philosophy of socially engaged arts practice.

Background There is extensive evidence associating arts engagement with improved quality of life and well-being, but few conceptual frameworks to understand these outcomes. This research explores the qualities and commitments of socially engaged art to effectively engage with patients and clinicians who are confronting the physical, social, and psychological impacts of facial nerve paralysis.

Methods This study combines creative and qualitative methods. Data collection includes interviews, observation, and responsive, experimental artistic practice with facial nerve patients and healthcare practitioners. This process involved iterative creative and philosophical exploration and reflection, with Levinasian ethics and care ethics developed as primary theoretical approaches which informed the development of creative outcomes. Simultaneously, patient interviews were analysed using Levinas-informed Interpretative Phenomenological Analysis to illuminate experiences at the Sydney Facial Nerve Clinic.

Results Fifteen artworks elucidating intimate aspects of identity, connection, isolation, and patient/healthcare practitioner relationships and experience were produced and exhibited. Six main themes were identified in patient experience that demonstrated how pathology itself could be impacted by experiences of care (or its absence).

Discussion Emergent socially engaged arts practice was found to offer an embodied form of care that was valued by patients and clinicians. Patients identified that engagement with such art practice was beneficial to their wellbeing and led to improved social and mental function. A philosophy of socially engaged practice, guided by Levinasian ethics, is therefore proposed, emphasising the relational aspects of care and contributing to the ongoing development of socially engage art practices.