• Assessing the Potential for Patient-led Surveillance After Treatment of Localized Melanoma (MEL-SELF) A Pilot Randomized Clinical Trial 

      Ackermann, Deonna M; Dieng, Mbatho; Medcalf, Ellie; Jenkins, Marisa C; van Kemenade, Cathelijne H; Janda, Monika; Turner, Robin M; Cust, Anne E; Morton, Rachael L; Irwig, Les; Guitera, Pascale; Soyer, Peter; Mar, Victoria; Hersch, Jolyn; Low, Donald; Low, Cynthia; Saw, Robyn P. M; Scolyer, Richard A; Drabarek, Dorothy; Espinoza, David; Azzi, Anthony; Lilleyman, Alister M; Smit, Amelia K; Murchie, Peter; Thompson, John F; Bell, Katy J.L.
      Published 2022
      Patient-led surveillance is a promising new model of follow-up care following excision of localized melanoma. Objective To determine whether patient-led surveillance in patients with prior localized primary cutaneous ...
      Open Access
      Article
    • Can Patient-Led Surveillance Detect Subsequent New Primary or Recurrent Melanomas and Reduce the Need for Routinely Scheduled Follow Up? A Protocol for the MELSELF Randomised Controlled Trial. 

      Ackermann, Deonna; Smit, Amelia K; Janda, Monika; van Kemenade, Cathelijne; Dieng, Mbathio; Morton, Rachael L; Turner, Robin M; Cust, Anne E; Irwig, Les; Hersch, Jolyn; Guitera, Pascale; Soyer, Peter; Mar, Victoria; Saw, Robyn PM; Low, Donald; Low, Cynthia; Drabarek, Dorothy; Espinoza, David; Emery, Jon; Murchie, Peter; Thompson, John F; Scolyer, Richard; Azzi, Anthony; Lilleyman, Alister; Bell, Katy J.L.
      Published 2021
      Most subsequent new primary or recurrent melanomas might be self-detected if patients are trained to systematically self-examine their skin and have access to timely medical review (patient-led surveillance). Routinely scheduled ...
      Open Access
      Preprint
    • Can patient-led surveillance detect subsequent new primary or recurrent melanomas and reduce the need for routinely scheduled follow-up? A protocol for the MEL-SELF randomised controlled trial 

      Ackermann, Deonna M.; Smit, Amelia K.; Janada, Monika; van Kemenade, Cathelijne H.; Dieng, Mbathio; Morton, Rachael L.; Turner, Robin M.; Cust, Anne E.; Irwig, Les; Hersch, Jolyn K.; Guitera, Pascale; Soyer, H. Peter; Mar, Victoria; Saw, Robyn P.M.; Low, Donald; Low, Cynthia; Drabarek, Dorothy; Espinoza, David; Emery, Jon; Murchie, Peter; Thompson, John F.; Scolyer, Richard A.; Azzi, Anthony; Lilleyman, Alister; Bell, Katy J.L.
      Published 2021
      Background Most subsequent new primary or recurrent melanomas might be self-detected if patients are trained to systematically self-examine their skin and have access to timely medical review (patient-led surveillance). ...
      Open Access
      Article
    • Experiences of Patient-Led Surveillance, Including Patient-Performed Teledermoscopy, in the MEL-SELF Pilot Randomized Controlled Trial: Qualitative Interview Study 

      Drabarek, Dorothy; Habgood, Emily; Janda, Monika; Hersch, Jolyn; Ackermann, Deonna M; Low, Don; Low, Cynthia; Morton, Rachael L; Dieng, Mbatho; Cust, Anne E; Morgan, Adelaide; Smith, Elloise; Bell, Katy J.L.
      Published 2022
      Current clinician-led melanoma surveillance models require frequent routinely scheduled clinic visits, with associated travel, cost, and time burden for patients. Patient-led surveillance is a new model of follow-up care ...
      Open Access
      Article
    • Experiences of Patient-Led Surveillance, Including Patient-Performed Teledermoscopy, in the MEL-SELF Pilot Randomized Controlled Trial: Qualitative Interview Study 

      Drabarek, Dorothy; Habgood, Emily; Janda, Monika; Hersch, Jolyn; Ackermann, Deonna; Low, Don; Low, Cynthia; Morton, Rachael L; Dieng, Mbathio; Cust, Anne E; Morgan, Adelaide; Smith, Elloise; Bell, Katy L J
      Published 2022
      Background: Current clinician-led melanoma surveillance models require frequent routinely scheduled clinic visits, with associated travel, cost, and time burden for patients. Patient-led surveillance is a new model of ...
      Open Access
      Article
    • Fear of New or Recurrent Melanoma After Treatment for Localised Melanoma 

      Bell, Katy J.L.; Mehta, Yachna; Turner, Robin M; Morton, Rachael M; Dieng, Mbathio; Saw, Robyn; Guitera, Pascale; McCaffery, Kirsten; Low, Donald; Low, Cynthia; Jenkins, Marisa; Irwig, Les; Webster, Angela C
      Published 2017-01-01
      Objective: To estimate the amount of fear of new or recurrent melanoma among people treated for localised melanoma in an Australian specialist centre. Methods: We randomly selected 400 potential participants from all those ...
      Open Access
      Article
    • Impact of personal genomic risk information on melanoma prevention behaviors and psychological outcomes: a randomized controlled trial 

      Smit, Amelia K.; Allen, Martin; Beswick, Brooke; Butow, Physllis; Dawkins, Hugh; Dobbinson, Suzanne J.; Dunlop, Kate L.; Espinoza, David; Fenton, Georgina; Kanetsky, Peter A.; Keogh, Louise; Kimlin, Michael G.; Kirk, Judy; Law, Matthew H.; Lo, Serigne; Low, Cynthia; Mann, Graham J.; Reyes-Marcelino, Gillian; Morton, Rachael L.; Newson, Ainsley J.; Savard, Jacqueline; Trevena, Lyndal; Wordsworth, Sarah; Cust, Anne E.
      Published 2021
      Purpose We evaluated the impact of personal melanoma genomic risk information on sun-related behaviors and psychological outcomes. Methods In this parallel group, open, randomized controlled trial, 1,025 Australians ...
      Open Access
      Article
    • Patient Preferences for Follow-up After Recent Excision of a Localized Melanoma 

      Lim, Wei-Yin; Morton, Rachael L.; Turner, Robin M.; Jenkins, Marisa C.; Guitera, Pascale; Irwig, Les; Webster, Angela C.; Dieng, Mbathio; Saw, Robyn P. M.; Low, Donald; Low, Cynthia; Bell, Katy J.L.
      Published 2018-02-28
      Importance The standard model of follow-up posttreatment of localized melanoma relies on clinician detection of recurrent or new melanoma, through routinely scheduled clinics (clinician-led surveillance). An alternative ...
      Open Access
      Article
    • Patients’ Views About Skin Self-examination After Treatment for Localized Melanoma 

      Dieng, Mbathio; Smit, Amelia K; Hersch, Jolyn; Morton, Rachael L; Cust, Anne E; Irwig, Les; Low, Donald; Low, Cynthia; Bell, Katy J.L.
      Published 2019
      What are the views of patients with melanoma on the importance of skin self-examination (SSE) and what role do they see for new digital technologies to support skin examinations? We aimed to explore the views of patients ...
      Open Access
      Article
    • Use of shared care and routine tests in follow-up after treatment for localised cutaneous melanoma 

      Lim, Wei-Yin; Turner, Robin M.; Morton, Rachael L.; Jenkins, Marisa C.; Irwig, Les; Webster, Angela C.; Dieng, Mbathio; Saw, Robyn P. M.; Guitera, Pascale; Low, Donald; Low, Cynthia; Bell, Katy J.L.
      Published 2018-06-20
      Background Patients may decide to undertake shared care with a general practitioner (GP) during follow-up after treatment for localised melanoma. Routine imaging tests for surveillance may be commonly used despite no ...
      Open Access
      Article