Browsing by author "Lewis, Sophie"
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The agentic Self and uncontrollable body: Young people’s management of chronic illness at university
Spencer, G; Lewis, Sophie; Reid, MPublished 2019Young people’s experiences of living with a long-term health condition have been largely investigated from the perspective of developing autonomy and optimal self-management of treatment regimens. Little existing research ...Article -
Cancer caregivers’ experiences of prognosis in Australia: a qualitative interview study.
Lewis, Sophie; Broom, Alex; Kenny, Katherine; Kirby, EmmaPublished 2020Objectives: Forecasting survival in cancer is a particularly challenging facet of oncological work and can involve complex interactions with patients and their families. While there is considerable research on patient ...Open AccessArticle -
Challenging times: disconnects between patient and professional temporalities in chronic condition management
Lewis, Sophie; Willis, Karen; Franklin, Marika; Smith, LorrainePublished 2022Chronic health conditions represent a key challenge for contemporary public healthcare. Current policy promotes self-management support to reduce demands on health services and improve patients’ health and wellbeing. Though ...Article -
Chronic condition self-management is a social practice
Franklin, Marika; Willis, Karen; Lewis, Sophie; Smith, LorrainePublished 2021Self-management is widely promoted in Western health care policies as a way to address the impact of increasing rates of chronic conditions on health care systems. Mostly informed by psychological theories, self-management ...Article -
The (Co) Production of Difference in the Care of Patients With Cancer From Migrant Backgrounds
Broom, Alex; Parker, R; Raymond, Stephanie; Kirby, Emma; Lewis, Sophie; Kokanovic, Renata; Adams, Jonathon; de Souza, Paul; Woodland, Lisa; Wyld, D; Lwin, Z; Eng-Siew, KohPublished 2020An extensive body of scholarship focuses on cultural diversity in health care, and this has resulted in a plethora of strategies to “manage” cultural difference. This work has often been patient-oriented (i.e., focused on ...Article -
Coping with COVID-19: The sociomaterial dimensions of living with pre-existing mental illness during the early stages of the coronavirus crisis
Lupton, Deborah; Lewis, SophiePublished 2021In this article, we use the case study method to detail the experiences of five participants who reported living with pre-existing mental illness during COVID-19. We adopted a sociomaterial analytical approach, seeking to ...Article -
"Covid Just Amplified the Cracks of the System": Working as a Frontline Health Worker during the COVID-19 Pandemic
Willis, Karen; Ezer, Paulina; Lewis, Sophie; Bismark, Marie; Smallwood, NatashaPublished 2021The COVID-19 pandemic has intensified existing workplace stresses and created new challenges for people working on the healthcare frontline, including rapid workplace changes and increasing uncertainty at work, along with ...Article -
The experience of facilitators and participants of long term condition self-management group programme: A qualitative synthesis.
Hughes, Stephen John; Wyke, Sally; Rogers, Anne; Lewis, Sophie; Willis, Karen; Smith, LorrainePublished 2017-06-01Objective Our aim was to systematically review the qualitative literature about the experiences of both facilitators and participants in a range of group-based programmes to support the self-management of long-term conditions. ...Open AccessArticle -
Goal setting in group programmes for long-term condition self-management support: experiences of patients and healthcare professionals
Hughes, Stephen John; Lewis, Sophie; Willis, Karen; Wyke, Sally; Rogers, Anne; Smith, LorrainePublished 2019-06-12Objective: To examine group facilitators’ and participants’ experiences of and engagement with goal setting in long-term condition (LTC) self-management group programmes. Design: We conducted a qualitative mixed method ...Open AccessArticle -
Hopeful dying? The meanings and practice of hope in palliative care family meetings
Kirby, Emma; Broom, Alex; MacArtney, J; Lewis, Sophie; Good, PPublished 2021Hope can carry considerable allure for people facing imminent mortality and for those who care for them. Yet, how hope is variously and relationally (re)produced within end-of-life care settings, remains under-researched. ...Article -
How do facilitators of group programmes for long-term conditions conceptualise self-management support?
Hughes, Stephen John; Lewis, Sophie; Willis, Karen; Wyke, Sally; Rogers, Anne; Smith, LorrainePublished 2018-08-01Objectives Increasing self-management skills in people with long-term conditions is widely advocated in policies and guidelines. Group programmes are a common format; yet, how self-management support objectives are enacted ...Open AccessArticle -
The incurable self: Negotiating social bonds and dis/connection with metastatic breast cancer
Lewis, Sophie; Newtown, Giselle; Kenny, Katherine; Boyle, FrancesPublished 2023As the culture of silence that once surrounded cancer has gradually given way to greater public awareness, normative visions of what cancer survivorship should entail have proliferated. These visions emphasise positivity ...Open AccessArticle -
Navigating and making choices about healthcare: The role of place
Lewis, Sophie; Willis, Karen; Collyer, FranPublished 2018In this paper, we examine the intersections between place and healthcare choice, drawing on Bourdieu's concepts of distinction and social space, and engaging with data from interviews with 78 Australians living in varied ...Article -
Participants’ experiences of and perceived value regarding different support types for long-term condition self-management programmes
Lewis, Sophie; Willis, Karen; Wyke, Sally; Rogers, Anne; Smith, Lorraine; Hughes, Stephen JohnPublished 2019-08-19Objectives Health professional-led group programmes are a common form of long-term condition self-management support. Much research has focused on clinical outcomes of group participation, yet there is limited research on ...Open AccessArticle -
Personhood, belonging, affect and affliction
Broom, Alex; Lewis, Sophie; Parker, Rhiannon; Williams Veazey, Leah; Kenny, Katherine; Kirby, Emma; Kokanović, Renata; Lwin, Zarnie; Koh, Eng-SiewPublished 2021What does migrancy mean for personhood, and how does this flow through caring relations? Drawing on life history interviews and photo elicitation with 43 people who identify as migrants and live with cancer, here we argue ...Open AccessArticle -
Potential inequities in availability of care from breast care nurses: a qualitative study reporting the experiences and perspectives of women with metastatic breast cancer in Australia.
Smith, Andrea; Boyle, Fran; Lewis, SophiePublished 2022Abstract Background: International consensus guidelines recommend patients with metastatic breast cancer have access to a nurse experienced in the treatment of metastatic breast cancer. This study aimed to explore women’s ...Open AccessArticle -
Retirees' perceptions of goal setting: A qualitative study
Dudley, Dorothy; O'Loughlin, Kate; Lewis, Sophie; Vanessa, LohPublished 2020Objective: To investigate the language and meanings that retirees give to goals, including their perceptions of the benefits and limitations of pursuing goals in retirement. Methods: In-depth interviews and mini-group ...Article -
The social meanings of choice in living-with advanced breast cancer
Lewis, Sophie; Kenny, Katherine; Broom, Alex; Kirby, Emma; Boyle, FrancesPublished 2021Individual choice is valorised as a core social value; yet the necessity and desirability of making choices takes on new significance for people living with incurable cancer who are required to make often difficult ...Open AccessArticle -
A time for self-care? Frontline health workers’ strategies for managing mental health during the COVID-19 pandemic
Lewis, Sophie; Willis, Karen; Bismark, M; Smallwood, NPublished 2022Frontline healthcare workers have experienced detrimental mental health impacts during the COVID-19 pandemic including anxiety, emotional distress, stress, fatigue, and burnout. But little is known about how these healthcare ...Open AccessArticle
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