• Core Outcome Measures for Trials in People With Coronavirus Disease 2019: Respiratory Failure, Multiorgan Failure, Shortness of Breath, and Recovery. 

      Tong, Allison; Baumgart, Amanda; Evangelidis, Nicole; Viecelli, Andrea K; Carter, Simon A; Azevedo, Luciano Cesar; Cooper, Tess; Bersten, Andrew; Cervantes, Lilia; Chew, Derek P; Crowe, Sally; Douglas, Ivor S; Flemyng, Ella; Elliott, Julian H; Hannan, Elyssa; Horby, Peter; Howell, Martin; Ju, Angela; Lee, Jaehee; Lorca, Eduardo; Lynch, Deena; Manera, Karine E; Marshall, John C; Gonzalez, Andrea Matus; McKenzie, Anne; Mehta, Sangeeta; Mer, Mervyn; Morris, Andrew Conway; Needham, Dale M; Nseir, Saad; Povoa, Pedro; Reid, Mark; Sakr, Yasser; Shen, Ning; Smyth, Alan R; Simpson, A John; Snelling, Tom; Strippoli, Giovanni F M; Teixeira-Pinto, Armando; Torres, Antoni; Turner, Tari; Webb, Steve; Williamson, Paula R; Woc-Colburn, Laila; Zhang, Junhua; Craig, Jonathan C
      Published 2021
      OBJECTIVES: Respiratory failure, multiple organ failure, shortness of breath, recovery, and mortality have been identified as critically important core outcomes by more than 9300 patients, health professionals, and the ...
      Article
    • Core Outcomes Set for Trials in People With Coronavirus Disease 2019. 

      Tong, Allison; Elliott, Julian H; Azevedo, Luciano Cesar; Baumgart, Amanda; Bersten, Andrew; Cervantes, Lilia; Chew, Derek P; Cho, Yeoungjee; Cooper, Tess; Crowe, Sally; Douglas, Ivor S; Evangelidis, Nicole; Flemyng, Ella; Hannan, Elyssa; Horby, Peter; Howell, Martin; Lee, Jaehee; Liu, Emma; Lorca, Eduardo; Lynch, Deena; Marshall, John C; Matus Gonzalez, Andrea; McKenzie, Anne; Manera, Karine E; McLeod, Charlie; Mehta, Sangeeta; Mer, Mervyn; Conway Morris, Andrew; Nseir, Saad; Povoa, Pedro; Reid, Mark; Sakr, Yasser; Shen, Ning; Smyth, Alan R; Snelling, Tom; Strippoli, Giovanni Fm; Teixeira-Pinto, Armando; Torres, Antoni; Turner, Tari; Viecelli, Andrea K; Webb, Steve; Williamson, Paula R; Woc-Colburn, Laila; Zhang, Junhua; Craig, Jonathan C
      Published 2020
      OBJECTIVES: The outcomes reported in trials in coronavirus disease 2019 are extremely heterogeneous and of uncertain patient relevance, limiting their applicability for clinical decision-making. The aim of this workshop ...
      Article
    • International Survey to Establish Prioritized Outcomes for Trials in People With Coronavirus Disease 2019. 

      Evangelidis, Nicole; Tong, Allison; Howell, Martin; Teixeira-Pinto, Armando; Elliott, Julian H; Azevedo, Luciano Cesar; Bersten, Andrew; Cervantes, Lilia; Chew, Derek P; Crowe, Sally; Douglas, Ivor S; Flemyng, Ella; Horby, Peter; Lee, Jaehee; Lorca, Eduardo; Lynch, Deena; Marshall, John C; McKenzie, Anne; Mehta, Sangeeta; Mer, Mervyn; Conway Morris, Andrew; Nseir, Saad; Povoa, Pedro; Reid, Mark; Sakr, Yasser; Shen, Ning; Smyth, Alan R; Snelling, Tom; Strippoli, Giovanni F M; Torres, Antoni; Turner, Tari; Webb, Steve; Williamson, Paula R; Woc-Colburn, Laila; Zhang, Junhua; Baumgart, Amanda; Cabrera, Sebastian; Cho, Yeoungjee; Cooper, Tess; Guha, Chandana; Liu, Emma; Gonzalez, Andrea Matus; McLeod, Charlie; Natale, Patrizia; Saglimbene, Valeria; Viecelli, Andrea K; Craig, Jonathan C
      Published 2020
      OBJECTIVES: There are over 4,000 trials conducted in people with coronavirus disease 2019. However, the variability of outcomes and the omission of patient-centered outcomes may diminish the impact of these trials on ...
      Article
    • Kidney transplant recipient perspectives on telehealth during the COVID-19 pandemic. 

      Huuskes, Brooke M; Scholes-Robertson, Nicole; Guha, Chandana; Baumgart, Amanda; Wong, Germaine; Kanellis, John; Chadban, Steve; Barraclough, Katherine A; Viecelli, Andrea K; Hawley, Carmel M; Kerr, Peter G; Coates, P Toby; Amir, Noa; Tong, Allison
      Published 2021
      Background The COVID-19 pandemic has challenged the delivery of health services. Telehealth allows delivery of care without in-person contacts and minimizes the risk of vial transmission. We aimed to describe the perspectives ...
      Article
    • Perspectives of patients, family members, health professionals and the public on the impact of COVID-19 on mental health. 

      Gardiner, Evangeline; Baumgart, Amanda; Tong, Allison; Elliott, Julian H; Azevedo, Luciano Cesar; Bersten, Andrew; Cervantes, Lilia; Chew, Derek P; Cho, Yeoungjee; Crowe, Sally; Douglas, Ivor S; Evangelidis, Nicole; Flemyng, Ella; Horby, Peter; Howell, Martin; Lee, Jaehee; Lorca, Eduardo; Lynch, Deena; Marshall, John C; Gonzalez, Andrea Matus; McKenzie, Anne; Manera, Karine; Mehta, Sangeeta; Mer, Mervyn; Morris, Andrew Conway; Nseir, Saad; Povoa, Pedro; Reid, Mark; Sakr, Yasser; Shen, Ning; Smyth, Alan R; Snelling, Tom; Strippoli, Giovanni F M; Teixeira-Pinto, Armando; Torres, Antoni; Viecelli, Andrea K; Webb, Steve; Williamson, Paula R; Woc-Colburn, Laila; Zhang, Junhua; Craig, Jonathan C
      Published 2022
      BACKGROUND: The coronavirus (COVID-19) pandemic has seen a global surge in anxiety, depression, post-traumatic stress disorder (PTSD), and stress. AIMS: This study aimed to describe the perspectives of patients with COVID-19, ...
      Article
    • Suspension and resumption of kidney transplant programs during the COVID‐19 pandemic: perspectives from patients, caregivers and potential living donors‐a qualitative study 

      Guha, Chandana; Tong, Allison; Baumgart, Amanda; Scholes-Robertson, Nicole; Isbel, Nicole; Kanellis, John; Campbell, Scott; Coates, Toby; Chadban, Steven
      Published 2020
      Background: Many countries have suspended kidney transplantation programs during the COVID‐19 pandemic because of concerns for patient safety and the shortage of healthcare resources. This study aimed to describe patient, ...
      Article