the experiences of caring for someone after stroke : a qualitative study of caregivers and stroke survivors.

Abstract

The majority of stroke survivors live with a permanent disability, and require some form of caregiver support. Research into the nature of stroke caregiving however, remains limited. Current literature provides evidence that support services and interventions for caregivers, especially in relation to managing affective symptoms, are unsatisfactory (Hackett & Anderson, 2006). The main aim of this study, therefore, was to investigate stroke caregiver experiences and needs, and their evaluation of existing support services. Twenty informal caregivers participated in individual semi-structured qualitative interviews covering all aspects of caregiving. Ten stroke survivors were also interviewed (predominantly for triangulation purposes) to discuss their views on their caregiver’s experiences. Data collection continued until, after at least three consecutive interviews, no new themes were identified. Data analysis and interpretation was primarily thematic, with the generation of an integrative set of themes. Five inter-related master themes with various subcategories emerged from the data: Relationships and Support; Caregiver Factors; Stroke Survivor Factors; External Stressors and Positive Outcomes. Caring for a stroke survivor involves a complex process of several different factors, all of which interact in different ways according to the individual. The study findings increase our understanding of caregiver experiences and needs, which in turn, should encourage healthcare professionals to develop improved and tailored support services and resources.