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|Title: ||Development and implementation of an evaluation framework for breast reconstruction decision support tool for women considering breast reconstruction following mastectomy|
|Authors: ||Gallagher, Olivia Beverley|
|Issue Date: ||28-Aug-2014|
|Publisher: ||University of Sydney|
Sydney Nursing School
|Abstract: ||Breast cancer survival has improved significantly, with almost ninety percent of diagnosed women being cured (Australian Institute of Health and Welfare (AIHW) & Cancer Australia, 2012). Despite no survival advantage between breast conserving surgery and mastectomy, there has been an increasing trend back to mastectomy as primary treatment; in addition to an increase in bilateral prophylactic mastectomy in the absence of a breast cancer diagnosis (with or without BRCA mutation) (Dragun et al., 2013; Elmore, Ganschow & Geller, 2010; Jones et al., 2009; Tuttle, Abbott, Arrington & Rueth, 2010). Breast reconstruction has been shown to lessen psychological morbidity and facilitate adjustment to an altered body image resulting from mastectomy (Denford, Harcourt, Rubin & Pusic, 2011; Hill & White, 2008). Few women are prepared for the complexity in considering the personal, clinical and situational factors affecting breast reconstruction decision making. Given the limited research on breast reconstruction patient education or decision making tools, this study aimed to develop a decision support tool for women considering breast reconstruction.
An evaluation framework was established to guide the development of a breast reconstruction decision support tool and was implemented over three phases:
1. Phase One undertook a needs analysis to explore the breast reconstruction decision making experiences and information needs of women who had undertaken breast reconstruction.
2. Phase Two developed a breast reconstruction decision support tool through the implementation of an evaluation framework driven by key stakeholders.
3. Phase Three completed implementation of the evaluation framework by conducting summative evaluation of the decision support tool’s value using survey and interview methods.
The breast reconstruction decision support tool was found to meet women’s information needs, perceived to be useful throughout a woman’s breast reconstruction experience, and considered an acceptable and useful tool to assist women making decisions about breast reconstruction. This research culminated in a nationally endorsed and accessible source of breast reconstruction information to assist Australian women with their decision making (www.canceraustralia.gov.au/ breastreconstruction).|
|Type of Work: ||PhD Doctorate|
|Type of Publication: ||Doctor of Philosophy Ph.D.|
|Appears in Collections:||Sydney Digital Theses (Open Access)|
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|GALLAGHER Olivia - Final Thesis.pdf||Final Thesis||1.92 MB||Adobe PDF|
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