|Title:||Informal Care in New South Wales For Survivors of Severe Neurotrauma|
|Publisher:||University of Sydney.|
Northern Clinical School.
|Abstract:||Introduction: Severe spinal cord injury (SCI) and traumatic brain injury (TBI) generate the greatest percentage of cost for care. Best available research on costs of care after severe neurotrauma acknowledges the limitations in the measurement and valuation of informal care time. Objective: To investigate the data collection and valuation methods of informal care time in defining the cost of care for NSW survivors of severe neurotrauma. Method: Sixty one adult survivors of severe neurotrauma, including high level SCI (n= 28) and severe TBI (n= 33) from both metropolitan and regional NSW were assessed using diary and recall questionnaire methodologies. The value of informal care was assessed using both replacement and contingent (self-valuation) methods. Results: Significant disparity in the estimate of informal care time was identified between diary (29 hours/week) and recall (61 hours/ week) methodologies (p<0.01). Assistance in personal care tasks was valued more highly by informal caregivers ($46/ hour) than domestic tasks ($29/ hour) and community living tasks ($29/ hour). Conclusion: Outcomes will inform resource planning through the better measurement and valuation of informal care time provided to people living with profound activity limitation following severe neurotrauma.|
|Access Level:||Access is restricted to staff and students of the University of Sydney . UniKey credentials are required. Non university access may be obtained by visiting the University of Sydney Library.|
|Rights and Permissions:||The author retains copyright of this thesis. It may only be used for the purposes of research and study. It must not be used for any other purposes and may not be transmitted or shared with others without prior permission.|
|Type of Work:||Masters Thesis|
|Type of Publication:||Master of Philosophy M.Phil|
|Appears in Collections:||Sydney Digital Theses (University of Sydney Access only)|
|OATES Joanne - Final thesis.pdf||Thesis||2.17 MB||Adobe PDF|
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