https://hdl.handle.net/2123/8998 2026-06-06T10:55:46Z 2026-06-06T10:55:46Z Clifton, Shane https://hdl.handle.net/2123/34236 2026-05-07T02:24:19Z 2020-01-01T00:00:00Z

Crippling Christian Theology as I Power My Wheelchair Out the Door Clifton, Shane This article draws on the author’s experience of spinal cord injury to reflect on theological method and central elements of Christian theology. It uses disability theory to unmask the ablest ideology that too often frames church hierarchies and that marginalizes and excludes people with disability and others who are different, notably LGBTQI people of faith. From this perspective, it provides a critical reading of the traditional threefold Christian gospel of perfect creation, fall, and redemption as renewed perfection, arguing that vulnerability, pain, and disability are not a consequence of the fall, but the product of the creative generativity of nature. It tentatively reimagines atonement theory and redemption as a reversal of unjust marginalization (transformative grace for those who experience and perpetrate evil). Finally it considers the transformation of the soul by reference to a disability aesthetic and the truth, goodness, and beauty of God and the diverse creation. It elevates disability as beautiful and desirable, a creative gift of infinite difference.

2020-01-01T00:00:00Z Clifton, Shane Stevens, Bruce https://hdl.handle.net/2123/34235 2026-05-07T02:24:26Z 2018-01-01T00:00:00Z

Happiness and Mental Illness: Virtue ethics in Dialogue with Psychology Clifton, Shane; Stevens, Bruce This interdisciplinary article explores the intersection between the virtue ethics tradition and psychological therapies exploring the meaning of happiness for people living with a disabling mental illness. The logic of virtue ethics faces the challenge of mental illness, which is how to conceive of eudaimonia in the context of an illfness that targets happiness and potentially disrupts a person’s capacity to function rationally and exercise virtue. Drawing on two illustrative case studies of schizophrenia and major depression disorder, this article identifies substantive points of contact between virtue ethics and the therapeutic strategies of recovery theory and Acceptance and Commitment Therapy. In so doing, it aims to provide ways of thinking about happiness that can help therapists and people with a mental illness conceive of flourishing, not despite mental illness, but by incorporating the experience into the storied meaning of life. And since mental illness reflects the vulnerabilities that are central to human life, its examination also expands the horizons of the virtue ethics tradition.

2018-01-01T00:00:00Z Clifton, Shane https://hdl.handle.net/2123/34234 2026-05-07T02:24:26Z 2018-01-01T00:00:00Z

Disability and the Complexity of Choice in the Ethics of Abortion and Voluntary Euthanasia Clifton, Shane In the polarized debates about abortion and voluntary euthanasia, disability advocates, who normally align with left-wing social forces, have tended to side with conservative and religious voices in expressing concerns about the impact of technological and sociopolitical developments on disabled futures. This paper draws on the social model of disability and the virtue ethics tradition to explain the alignment between the religious and disability perspectives, and the theory of transformative choice to highlight the limits and biases of the pro-choice logic. Yet, it also recognizes the inherent contradiction of disabled advocates taking a paternalistic position against the personal agency of women and people facing terminal illnesses. A disability perspective serves the discussion of abortion and euthanasia as an encouragement to work together for the building of a society that enables people with diverse disabilities to exist and flourish, and helps pregnant women, people facing disabling and terminal illnesses, and politicians and social influencers to make informed choices.

2018-01-01T00:00:00Z Clifton, Shane https://hdl.handle.net/2123/34233 2025-08-18T06:35:37Z 2014-01-01T00:00:00Z

The dark side of prayer for healing: Toward a theology of well-being Clifton, Shane This paper explores the relationship between disability and pentecostal theologies and practices of healing. First, it draws on the testimony of people with a disability, describing the challenge of being the “elephant in the room”: the obviously unhealed in a social space in which supernatural healing is understood to be connected to the gospel, a reward of faith, and a central part of a life and ministry of the church. Second, it deconstructs pentecostal theologies and practices of healing, identifying their potentially alienating effect. Finally, it proposes an alternative orientation, replacing the emphasis upon divine healing with a focus on well-being. To this end, it draws on the holistic intention of the pentecostal Full Gospel and relates this to the virtue tradition, with its concern for long-term flourishing in the midst of the hardship and fragility of life.

2014-01-01T00:00:00Z Clifton, Shane https://hdl.handle.net/2123/34232 2025-08-18T06:36:19Z 2018-01-01T00:00:00Z

Crippled Grace: Disability, Virtue Ethics, and the Good Life Clifton, Shane Crippled Grace combines disability studies, Christian theology, philosophy, and psychology to explore what constitutes happiness and how it is achieved. The virtue tradition construes happiness as whole-of-life flourishing earned by practiced habits of virtue. Drawing upon this particular understanding of happiness, Clifton contends that the experience of disability offers significant insight into the practice of virtue, and thereby the good life. With its origins in the author’s experience of adjusting to the challenges of quadriplegia, Crippled Grace considers the diverse experiences of people with a disability as a lens through which to understand happiness and its attainment. Drawing upon the virtue tradition as much as contesting it, Clifton explores the virtues that help to negotiate dependency, resist paternalism, and maximize personal agency. Through his engagement with sources from Aristotle to modern positive psychology, Clifton is able to probe fundamental questions of pain and suffering, reflect on the value of friendship, seek creative ways of conceiving of sexual flourishing, and outline the particular virtues needed to live with unique bodies and brains in a society poorly fitted to their diverse functioning. Crippled Grace is about and for people with disabilities. Yet, Clifton also understands disability as symbolic of the human condition--human fragility, vulnerability, and embodied limits. First unmasking disability as a bodily and sociocultural construct, Clifton moves on to construct a deeper and more expansive account of flourishing that learns from those with disability, rather than excluding them. In so doing, Clifton shows that the experience of disability has something profound to say about all bodies, about the fragility and happiness of all humans, and about the deeper truths offered us by the theological virtues of faith, hope, and love.

2018-01-01T00:00:00Z Howe, Keran Bulkeley, Kim Llewellyn, Gwynnyth https://hdl.handle.net/2123/34155 2025-07-30T00:43:25Z 2025-07-29T00:00:00Z

Report on Interviews About Technology Accessibility, Support and Safety Considerations for the NDIS Disability Wellbeing Index Howe, Keran; Bulkeley, Kim; Llewellyn, Gwynnyth The Centre for Disability Research and Policy (CDRP), University of Sydney, was contracted to contribute to a three-year research project, 2022-2024, funded by the National Disability Insurance Agency (NDIA) and lead by Associate Professor Gang Chen, Monash University. The overarching aim of this research project was to design and test a preference-based wellbeing instrument that captures factors impacting on the wellbeing of people with disability in Australia, now known as the Disability Wellbeing Index (DWI). The role of the team based at the CDRP was to facilitate people with disabilities being involved in each stage of the research, including accessibility, safe environment, and self-reporting considerations for survey respondents. This is the second of four reports documenting the contribution of the team at the CDRP. This report describes the results of a consultations conducted with representatives from Disabled People’s Organisations (DPOs) and Disability Representative Organisations (DROs) to understand the accessible formats, support options, and safety considerations required to facilitate completion of the DWI. Dr Keran Howe, on behalf of CDRP, consulted with 16 representatives from eight Disabled People’s Organisations (DPOs) and Disability Representative Organisations (DROs) during April-June 2023. Results from this study confirmed that people with disability strongly recommended self-reporting of wellbeing where at all possible, with proxy completion being the option of last resort. Findings informed the development of a suite of alternative formats and support options that met a range of respondent support needs and communication preferences and further detailed safety considerations needing to be addressed, such as the potential for certain items to be triggering and cause distress.

2025-07-29T00:00:00Z Hines, Monique Bulkeley, Kim Llewellyn, Gwynnyth https://hdl.handle.net/2123/34153 2025-07-30T00:40:04Z 2025-07-29T00:00:00Z

Report on the Development of Alternative Formats and Support Options for the Disability Wellbeing Index (DWI): Promoting Accessibility, Safety, and Self-Reporting for Survey Respondents Hines, Monique; Bulkeley, Kim; Llewellyn, Gwynnyth The Centre for Disability Research and Policy (CDRP), University of Sydney, was contracted to contribute to a three-year research project, 2022-2024, funded by the National Disability Insurance Agency (NDIA) and lead by Associate Professor Gang Chen, Monash University. The overarching aim of this research project was to design and test a preference-based wellbeing instrument that captures factors impacting on the wellbeing of people with disability in Australia, now known as the Disability Wellbeing Index (DWI). The role of the team based at the CDRP was to facilitate people with disabilities being involved in each stage of the research, including accessibility, safe environment, and self-reporting considerations for survey respondents. This is the third of four reports documenting the contribution of the team at the CDRP. In this report, we describe the process undertaken by the CDRP team from July-September 2023 to develop a suite of alternative formats and support options designed to address accessibility for self-report and safety considerations for completing the DWI. The final versions of the DWI preference weighting survey and support options offered to survey respondents are also presented.

2025-07-29T00:00:00Z West, Raelene Bulkeley, Kim Llewellyn, Gwynnyth Cooper, Emma Plunkett, Karleen https://hdl.handle.net/2123/34149 2025-07-30T00:23:16Z 2025-07-28T00:00:00Z

Disability Wellbeing Index (DWI): Analysis of Qualitative Components with Adult and Young People with Disability West, Raelene; Bulkeley, Kim; Llewellyn, Gwynnyth; Cooper, Emma; Plunkett, Karleen The Centre for Disability Research and Policy (CDRP), University of Sydney, was contracted to contribute to a three-year research project, 2022-2024, funded by the National Disability Insurance Agency (NDIA) and lead by Associate Professor Gang Chen, Monash University. The overarching aim of this research project was to design and test a preference-based wellbeing instrument that captures factors impacting on the wellbeing of people with disability in Australia, now known as the Disability Wellbeing Index (DWI). The role of the team based at the CDRP was to facilitate people with disabilities being involved in each stage of the research, including accessibility, safe environment, and self-reporting considerations for survey respondents. This is the first of four reports documenting the contribution of the team at the Centre for Disability Research and Policy. This report describes the results of a qualitative analysis of focus groups and interviews conducted in 2022 with adults and young people with disability to explore their perspectives on initial versions of the DWI and issues of concern to be addressed in the implementation of the DWI. The findings from this study informed the refinement of DWI domains, items, and descriptors, and helped to identify wider issues that needed to be further explored, including safety considerations such as the context within which people complete the DWI and the accessibility of the DWI.

2025-07-28T00:00:00Z Hines, Monique Bulkeley, Kim Llewellyn, Gwynnyth https://hdl.handle.net/2123/34146 2025-07-30T00:17:56Z 2025-07-28T00:00:00Z

Final Report on the Alternative Formats and Support Options for the Disability Wellbeing Index (DWI): Promoting Accessibility, Safety, and Self Reporting for Survey Respondents Hines, Monique; Bulkeley, Kim; Llewellyn, Gwynnyth The Centre for Disability Research and Policy (CDRP), University of Sydney, was contracted to contribute to a three-year research project, 2022-2024, funded by the National Disability Insurance Agency (NDIA) and lead by Associate Professor Gang Chen, Monash University. The overarching aim of this research project was to design and test a preference-based wellbeing instrument that captures factors impacting on the wellbeing of people with disability in Australia, now known as the Disability Wellbeing Index (DWI). The role of the team based at the CDRP was to facilitate people with disabilities being involved in each stage of the research, including accessibility, safe environment, and self-reporting considerations for survey respondents. This is the final of four reports documenting the contribution of the team at the CDRP. In this report, we describe the implementation of the alternative formats and support options offered to DWI survey respondents and our understanding of factors that facilitated (or did not) NDIS participants completing the DWI survey. These insights will help refine future iterations of the DWI and provide guidance for improving the provision of accessible communications to people with disability.

2025-07-28T00:00:00Z Damian, Mellifont Smith-Merry, Jennifer https://hdl.handle.net/2123/31749 2026-04-29T00:31:53Z 2023-10-10T00:00:00Z

Examining employment barriers and enablers for people with psychosocial disability – A scoping review Damian, Mellifont; Smith-Merry, Jennifer This report details the findings of our study about the employment of people with psychosocial disability. This research was commissioned by Candella and conducted by two researchers from the Centre for Disability Research and Policy at The University of Sydney. The study was led by a researcher with lived experience of disability with the Director of the Centre holding a supervisory role. The researchers carried out a scoping review across all years on publications that specifically focused on employment and psychosocial disability or mental impairment. Our research was summarised by applying thematic analysis against the 54 included publications to reveal themes corresponding to each of the research questions. In summary, we have addressed the four questions of: 1. What are the barriers to employment faced by individuals with psychosocial disability? Our inductive analysis has revealed a total of seven themes relating to the barriers to employment faced by individuals with psychosocial disability. These barriers included: 1. stigma as directed towards people with psychosocial disability as a barrier to employment; 2. discrimination against people with psychosocial disability as a barrier to gaining and maintaining employment; 3. policy gaps and challenges to improve employment outcomes for people with psychosocial disability; 4. service and program shortfalls that can hinder the employment of people with psychosocial disability; 5. psychosocial disability-related challenges to gaining or retaining employment; 6. legal shortfalls that fail to protect employees with psychosocial disability from discrimination in the workplace; and 7. inflexible workplace processes and prescriptive practices that can impede the employment of people with psychosocial disability. 2. How do the barriers experienced differ across various demographic groups (e.g., age, gender, socioeconomic status, geographic location)? We noted a general paucity of publications covering how employment barriers for people with mental impairments vary across demographic groups. The five groups identified by our thematic analysis were: 1. gender; 2. socioeconomic status; 3. age; 4. geographic location; and 5. intersectional discrimination. Nonetheless, our review revealed evidence of employment barriers variably experienced within demographic groups. For example, women with mental impairments were reported as: experiencing more discrimination than men; receiving less employment and advancement opportunities than men; and less likely to make a formal complaint about discrimination in the workplace than their male colleagues. 3. What measures can help to address the employment barriers that are faced by individuals with psychosocial disability? This scoping review revealed nine measures that are described in the literature as helping to address the employment barriers experienced by people with psychosocial disability. These evidence-based measures included: 1. service design improvements including those that are co-designed by people with psychosocial disability; 2. flexible and accommodating workplace arrangements and processes; 3. education and training to encourage the employment of people with psychosocial disability; 4. programs, schemes and interventions described as improving the employment participation of people with psychosocial disability; 5. current legal measures and proposed revisions to redress discrimination against employees with psychosocial disability; 6. government and organisational policies to support the employment of people with psychosocial disability; 7. activism and advocacy to redress the stigma and discrimination as directed towards people with psychosocial disability; 8. technology assisting the inclusion of people with psychosocial disability in the workplace; and 9. contact with people with psychosocial disability in the workplace. 4. What role do workplace cultures play in either exacerbating or mitigating these barriers? Our review has revealed a scarcity of research explaining the role played by workplace cultures in either exacerbating or mitigating employment barriers for people with psychosocial disability. Nonetheless, thematic analysis has revealed two themes relating to workplace cultures exacerbating employment barriers for people with psychosocial disability. These themes are: 1. alienating, divisive and unaccommodating workplace cultures where employees with psychosocial disability are avoided; and 2. A doubting culture that unfairly questions the employability of people with mental impairments. Two themes captured workplace cultures that mitigate employment barriers for people with psychosocial disability. The themes included: 1. collegiate and accommodating culture that values diversity and inclusion; and 2. inclusive workplace culture through leadership. We conclude with a message that barriers confronting the employment of people with psychosocial disability can be entwined (e.g., psychosocial disability related challenges exacerbated by inflexible workplace processes and practices). Furthermore, we have noted entanglements also occurring among policy measures that attempt to remove or lessen these barriers (e.g., use of technologies such as remote access advancing workplaces that are flexible and accommodating of people with psychosocial disability). Australian policymakers are therefore advised to be aware of these kinds of complications, with employment barriers and the measures to redress them not to be looked at in isolation. Finally, we make the call for investment in research that can help to fill in the wide-ranging research gaps that have been identified by our scoping review.

2023-10-10T00:00:00Z Lewis, Sophie Kenny, Katherine Broom, Alex Kirby, Emma Boyle, Frances https://hdl.handle.net/2123/31744 2025-10-14T22:28:38Z 2021-01-01T00:00:00Z

The social meanings of choice in living-with advanced breast cancer Lewis, Sophie; Kenny, Katherine; Broom, Alex; Kirby, Emma; Boyle, Frances Individual choice is valorised as a core social value; yet the necessity and desirability of making choices takes on new significance for people living with incurable cancer who are required to make often difficult decisions about treatment, care and family life, amidst considerable vulnerability and precariousness. There has been comparatively little exploration of how choice is negotiated and made meaningful under the spectre of incurability and a contracted future. In this paper, drawing on multiple qualitative interviews with 38 women with metastatic breast cancer, we explore how they experience and give meaning to choice in relation to their health (and beyond) in their daily lives. Our analysis highlights that while exercising choice was sometimes a concealed or silent pursuit, choice was always a socially negotiated and temporally unfolding process, nested within relational and interpersonal dynamics. Choices were also often constrained, even foreclosed, due to situational and relational dynamics. Yet even in the absence of choice, the idea of choice-as-control was discursively embraced by women. We argue that greater attention is needed to the affective, temporal and economic dimensions of choice, and how treatment decisions are asymmetrically structured when considered within the normative context of cancer.

2021-01-01T00:00:00Z Lewis, Sophie Newtown, Giselle Kenny, Katherine Boyle, Frances https://hdl.handle.net/2123/31743 2025-10-14T22:28:38Z 2023-01-01T00:00:00Z

The incurable self: Negotiating social bonds and dis/connection with metastatic breast cancer Lewis, Sophie; Newtown, Giselle; Kenny, Katherine; Boyle, Frances As the culture of silence that once surrounded cancer has gradually given way to greater public awareness, normative visions of what cancer survivorship should entail have proliferated. These visions emphasise positivity and perseverance in pursuit of cure. While these visions provide comfort to many, for people with metastatic cancer the emphasis on cure can undermine their sense of belonging to the broader collective of people living-with cancer. Drawing on semi-structured interviews with 38 Australian women living with metastatic breast cancer, we explore how incurable cancer inflects understandings of self and transforms interpersonal relationships. Extending ideas around biosociality and belonging, we explore the tenuousness of social bonds, revealing how (in)visibility, (in)authenticity and (in)validation circulate within the daily lives of women with metastatic breast cancer. We conceptualise accounts according to four social bonds: (1) threatened bonds where a relationship is strained by misunderstanding, (2) severed bonds where a relationship is ruptured due to misunderstanding, (3) attuned bonds whereby a relationship is based on shared identification, and (4) flexible social bonds when a relationship is based on mutual understanding. More broadly, we illustrate the persistence of normative visions of cancer survivorship and their enduring effects on those whom such visions exclude.

2023-01-01T00:00:00Z Hancock, Nicola Mellifont, Damian Scanlan, Justin Newton Hamilton, Debra Smith-Merry, Jennifer https://hdl.handle.net/2123/29557 2022-09-21T00:50:43Z 2022-09-16T00:00:00Z

Breaking down Barriers: Co-designed recommendations to reduce stakeholder identified NDIS access barriers for people with psychosocial disability Hancock, Nicola; Mellifont, Damian; Scanlan, Justin Newton; Hamilton, Debra; Smith-Merry, Jennifer The Issue The National Disability Insurance Scheme (NDIS) commenced in 2016 and is designed to support people with all types of disability including those living with psychosocial disability. However, many thousands of Australians living with psychosocial disability have still not applied to access the Scheme and are consequently missing out on their right to receive valuable NDIS supports to advance their social and economic inclusion. The Project Aims The project aims were to work with stakeholders to 1. Understand the barriers to applying to the NDIS for people living with psychosocial disability, and 2. Identify solutions to remove or reduce these barriers and to synthesise these into a practical set of stakeholder-informed recommendations. Across all states and territories, 386 stakeholders collaborated on this project. Stakeholders included: 1. people living with psychosocial disability of mental distress; 2. their family and friends, and 3. workers and organisations engaged in supporting or advocating for them. The Approach The project was conducted over three phases: 1. A scoping review of literature to identify previously reported barriers to applying to the NDIS for people with psychosocial disability – used to inform phase 2 survey. 2. A national survey to identify current, stakeholder informed and prioritised barriers. 3. Co-design of practical, lived experience informed recommendations to address NDIS access barriers with stakeholders. The Barriers Stakeholders described ten broad and interconnected NDIS access barriers for people with psychosocial disability. These included: 1. Key information about NDIS is confusing or not accessible 2. Hard to get supports to help to apply - formal (services) and informal (family and friends) 3. Hard to obtain evidence required by the NDIA 4. Application process is too long, complicated, and inflexible 5. Application process is harmful to mental health and well-being 6. The application process does not accommodate for mental illness and psychosocial disability 7. The negative reputation of NDIA staff and culture 8. Disconnect between ‘disability’ and ‘recovery’ 9. Personal beliefs, fears and stigma, and 10. It is not worth it – NDIS won’t meet my needs anyway. Each of these is detailed within the report. The Recommendations Seven recommendations were identified, reviewed and refined by stakeholders. These recommendations are practical, lived-experience informed actions to address NDIS access barriers faced by people living with psychosocial disability. 1. Build, maintain and disseminate accurate, up-to-date, easily accessible information - Update, enhance and build upon best currently available information. Invest in and maintain the update of a single national source of information. Enhance the dissemination of this information including easy read downloadable one-pagers that can be printed and paper-based fliers to maximise accessibility. 2. Co-develop and co-deliver systemic training and establish workforce support champions – Co-develop and deliver continually available training for health and community service providers. GPs, public, community and private mental health, disability and social services require ongoing access to training about the psychosocial stream of the NDIS. Workforce support champions will provide expert support and guidance to complement this training so that workers can provide accurate and helpful support, advice and evidence to people who are considering or are applying for the NDIS. 3. Establish navigator positions – independent and psychosocial specific - Create a clear, independent NDIS Psychosocial specific Navigator role to assist individuals, family members and service providers throughout the NDIS application process. 4. Cover out-of-pocket expenses - Create funding streams or models of reimbursement to ensure that people have equitable access to the experts required to provide evidence of psychosocial disability without incurring out-of-pocket expenses. 5. Commission and fund an independent evaluation of the application process specifically for people with psychosocial disability - Independent evaluation of the impacts of: a) recent legislative changes; b) the future implementation of the Recovery Framework; and c) adoption and future implementation of the recommendations within this report, on the experiences of the NDIS application process for people living with psychosocial disability. 6. Co-develop and co-deliver recovery and psychosocial disability training for a. NDIA staff, b) NDIA partner staff (Local Area Coordinators - LACs), and c) NDIS service provider staff (community managed/controlled organisations) - All staff within these 3 distinct workforces need to have access to recovery-oriented, trauma-informed psychosocial disability training and education that is co-developed and co-delivered with people with psychosocial disability. 7. Commission and fund an independent review of NDIA culture and workforce issues - Review the impact of implementing the NDIS Psychosocial Recovery-Oriented Framework agenda on NDIA staffing practice and cultural issues. Conclusion Almost 400 stakeholders partnered with us to identify current barriers to applying for NDIS support. They then engaged with us to develop seven key, lived experience informed, recommendations to address those barriers. These seven practical action-oriented recommendations need urgent implementation to enable the people living with psychosocial disability who are most disadvantaged and most in need of NDIS support to be able to apply for that support. The feasibility and value of each of these recommendations is evidenced by them being raised across numerous previous national NDIS-focused reports including for example, the Tune Review and the ‘Mind the Gap’ report. Today, stakeholders are asking for more than policymakers’ awareness of the barriers that deny much needed NDIS access – although these too are re-iterated and further detailed within this report. Stakeholders call for immediate investment in these practical actions to ‘break down barriers’ to accessing NDIS support and by doing so, improve the lives of many Australians living with psychosocial disability.

2022-09-16T00:00:00Z Centre of Research Excellence in Disability and Health https://hdl.handle.net/2123/28467.2 2025-10-14T22:28:38Z 2022-05-02T00:00:00Z

Disability and Wellbeing Monitoring Framework: Baseline indicator data for Australians aged 18-64 years Centre of Research Excellence in Disability and Health This report presents the first national data using the Disability and Wellbeing Monitoring Framework and Indicators developed by the National Health and Medical Research Council Centre of Research Excellence in Disability and Health. The Monitoring Framework provides a comprehensive structure for measuring and reporting inequalities between people with and without disability in relation to health and the social determinants of health. Baseline indicator data are presented for people aged 18 to 64 years with disability in Australia, making comparisons with people without disability where data are available. Indicator data are disaggregated by gender (female/male). Where possible, data are also reported for the subgroup of people with ‘severe disability’. This report also highlights gaps and limitations in national data related to people with disability. The list of data gaps in each Framework domain serves as a guide for ongoing efforts in data development to build a more comprehensive evidence base to support closing the disability inequality gap. Measuring inequality is essential for identifying the barriers faced by people with disability in exercising their human rights. Evidence of disability-related inequalities can inform action to remove barriers and reduce inequalities. Data in this report, and in subsequent reports that monitor change over time, will help to identify policy priorities, inform policy development, evaluate the effectiveness of policies and programs, and hold key actors to account.

2022-05-02T00:00:00Z Madden, Richard https://hdl.handle.net/2123/14261 2026-04-29T00:31:48Z 2015-11-01T00:00:00Z

Policy Bulletin 5, 2015 - National Disability Insurance Scheme: Commonwealth Financial Arrangements up to 2019-20 Madden, Richard The National Disability Insurance Scheme (NDIS) was passed into law in early 2013 and pilot projects commenced on 1 July 2013, with full rollout to begin on 1 July 2016. The arrangements for financing the NDIS are complex and have not been brought together in the 2015-16 Commonwealth Budget papers (1) or those of earlier years. This Bulletin collects and connects available information on the Commonwealth Government’s NDIS financing arrangements up to and including the 2015-16 Budget, and the September 2015 Bilateral Agreements between the Commonwealth and NSW and Victoria. It builds on and updates information contained in an earlier paper (2).

2015-11-01T00:00:00Z Madden, Ros Bundy, Anita Clemson, Lindy Einfeld, Stewart Gilroy, John Glozier, Nick Kayess, Rosemary Llewellyn, Gwynnyth Madden, Richard Manga, Robert Mpofu, Elias Stancliffe, Roger https://hdl.handle.net/2123/13577 2026-04-29T00:31:57Z 2011-05-01T00:00:00Z

Submission to the Productivity Commission on Disability Care and Support 11 May 2011 Madden, Ros; Bundy, Anita; Clemson, Lindy; Einfeld, Stewart; Gilroy, John; Glozier, Nick; Kayess, Rosemary; Llewellyn, Gwynnyth; Madden, Richard; Manga, Robert; Mpofu, Elias; Stancliffe, Roger The authors of this submission welcome the Productivity Commission (PC) Draft Report and many of the key features of the proposed NDIS including: • the proposal for a scheme to provide long term care and support on an entitlement basis, • many of the accompanying features of the approach outlined, including the no fault basis of provision, the inclusion of aids and equipment, and the recognition of the need to include the full range of support services, • the acknowledgment of unmet demand and the need for significant new funding. Our comments on the draft report are made in the spirit that we endorse the main directions of the proposed scheme, which would be of great benefit to the Australian people, most especially people with disabilities and their families. We sincerely hope that governments will respond positively and promptly to the vision laid out in the Draft Report. We offer constructive criticism to maximise the chances of the scheme’s success, in terms of enabling people to access the supports they need, on an equitable basis. In this submission we focus on 5 areas: 1. Eligibility and assessment 2. Assessment Tools 3. Overcoming access and equity barriers for Aboriginal communities 4. Research and Data 5. Governance

2011-05-01T00:00:00Z Faculty of Arts and Sciences Centre for Disability Research and Policy https://hdl.handle.net/2123/13579 2026-04-29T00:31:54Z 2013-01-01T00:00:00Z

SUBMISSION ON THE NATIONAL DISABILITY INSURANCE SCHEME BILL 2012 TO THE SENATE STANDING COMMITTEES ON COMMUNITY AFFAIRS JANUARY 2013 Faculty of Arts and Sciences; Centre for Disability Research and Policy The NDIS is an important and needed reform to Australia’s disability system. There is much of merit in the NDIS Bill. Its implementation poses some challenges, to ensure a clear, sustainable and rights-based system, resulting in the outcomes desired by the community. This submission seeks to contribute to the current review of the draft NDIS legislation, and to the design and implementation of the Scheme. We have concentrated on areas where we believe we have something constructive to offer in the timeframe. None of our comments or suggestions implies a need for delay in the Scheme. Our suggestions are framed in the context of the United Nations Convention on the Rights of Person with Disabilities (CRPD), the technical framework of the International Classification of Functioning Disability and Health (ICF) and an entitlement-based service system which supports people’s rights to participate in all areas of life and seeks to provide an environment which enables these rights to be exercised. Our main suggestions are as follows:  Section 23: Residence criteria should be based on Medicare criteria, to promote the equity of the NDIS in the wider service system.  Sections 24, 25, 27: Disability requirements and related rules should be based on an accurate representation of the ICF. Embedding the old linear causal model of disability in the Bill will lead to confusion, inefficiency and challenge. The idea of ‘permanent impairment’ is not helpful and should be changed. New provisions for these Sections are proposed. Some suggestions about the design of assessment instruments are included.  Section 26: Our discussion provides some ideas about why and how additional expert reports may assist the process and the person with disability involved. A medical examination should not become routinely sought and nor should a health condition become part of the eligibility criteria.  Long-term cost containment suggestions are made – including developing models which better estimate the costs of reasonable and necessary supports, as the NDIS matures and experience builds. Such measures are needed, to protect the universality and sustainability of the Scheme.  Chapter 5 on compensation should be removed and replaced by government-togovernment agreements and compensation reforms, to preserve the primacy and universality of the NDIS, and to avoid the costs of adjustment being borne by individual people with disabilities.  National statistics must be published as part of the Agency’s responsibilities and as part of its public accountability for outcomes from the Scheme. As recommended by the Productivity Commission, data should be made available for research. Data should be based on the ICF so that it relates to population survey data and data from other sources based on this international standard. Such data must include information on the environment of people and the service system surrounding the ICF. A critical part of the Australian environment is information and communication Submission on NDIS Bill 25 January 2013 2 technologies; at present, however, there are shortfalls in access of Australians with disabilities to digital technologies — a 'disability digital divide'. Nationally, we have little precise idea about the scale, scope, and impact of this digital exclusion. This will affect, but can be remedied by, the administration of the Scheme.  There should be at least 3 people on the NDIS Board with experience or knowledge of the provision or use of disability services (Section 127).  There are lessons to be learned from international experience, service systems and the wider literature. Implications for the NDIS frameworks, principles and terminology are discussed in our final section.

2013-01-01T00:00:00Z Madden, Richard https://hdl.handle.net/2123/13575 2026-04-29T00:31:54Z 2010-08-01T00:00:00Z

Submission to the Productivity Commission - National Disability Long ­term Care and Support Scheme Madden, Richard This submission encourages and accepts the premises of a National Disability Long‐term Care and Support Scheme (the National Disability Scheme): • No fault • Entitlement based • Support provided in accordance with need for support • Focused on provision of and encouragement for habilitation and rehabilitation • Providing support for services to people with a disability, rather than income support • Integrates people with disabilities in society • Administratively simple and timely The following matters will be addressed • Criteria for the National Disability Scheme should be those set out by Woodhouse in 1973‐4 • Need to set aside provisions of current compensation systems that do not meet the principles of the NDS • Access to Medicare and other community wide health financing systems for all Australians requiring medical, hospital, medicines and other health services • The need for improved funding for habilitation and rehabilitation services • At the commencement of the Scheme, coverage should be limited for people first claiming after age 55 • Funding • Education and training

2010-08-01T00:00:00Z Madden, Ros Bundy, Anita Kayess, Rosemary Llewellyn, Gwynnyth Madden, Richard Manga, Robert Mpofu, Elias Stancliffe, Roger https://hdl.handle.net/2123/13576 2026-04-29T00:31:56Z 2010-01-01T00:00:00Z

Submission to the Productivity Commission on Disability Care and Support Madden, Ros; Bundy, Anita; Kayess, Rosemary; Llewellyn, Gwynnyth; Madden, Richard; Manga, Robert; Mpofu, Elias; Stancliffe, Roger The authors of this submission welcome: • the proposal for a scheme to provide long term care and support on an entitlement basis, • many of the accompanying features of the approach outlined, including the no fault basis of provision, the inclusion of aids and equipment, and the recognition of the need to include the full range of support services, • the acknowledgment of unmet demand and the need for significant new funding.

2010-01-01T00:00:00Z Madden, Rosamond H Glozier, Nick Mpofu, Elias https://hdl.handle.net/2123/13580 2026-04-29T00:09:11Z 2010-04-01T00:00:00Z

Eligibility, the ICF and the UN Convention: Australian perspectives Madden, Rosamond H; Glozier, Nick; Mpofu, Elias The UN Convention on the Rights of Persons with Disabilities, in Australia, acts as a philosophical and moral statement and framework guiding integrated and strategic policy across the nation. Broad policy agreement has been reached by governments, and both the government and non-government sectors are developing strategies for implementation or evaluation. There is however a need for a more integrated approach to disability policy and information, reflecting all three components of the Italian project: • legislation and a high level philosophical framework and policy guide; • a technical framework that can underpin specific policies and programs aiming to achieve the major goals; and , • a language and set of tools, relating to both the above, that provide infrastructure for assessment methods and information systems. The International Classification of Functioning, Disability and Health (ICF) is the ideal tool to support the latter two components, consistent with the UN Convention. While the ICF has been used as the basis for national data standards, in population surveys and in the national data collection on disability support services, there is considerable scope for greater use of it, including using all domains of the Activities and Participation and the Environmental Factors component for policy, information and service provision, to advance a disability-inclusive society. Information available from the income support system and from generic services could be enhanced by reference to the ICF components. It would be of significant national value in Australia, especially as a ‘continuum of care’ is desired, if consistency of concepts and information were expanded across health and social welfare sectors. It would then be possible to obtain consistent data from health, aged care, disability and community services systems about key aspects of health and functioning, building a consolidated picture of access and experience across these sectors. Without attention to all three components of the Italian project and continuing effort to meet the challenges identified in this paper, it will not be possible to determine whether the goals of Australia’s National Disability Agreement or the ambitions of the Convention are achieved.

2010-04-01T00:00:00Z Madden, Richard https://hdl.handle.net/2123/13578 2026-04-29T00:31:50Z 2011-05-01T00:00:00Z

Productivity Commission Inquiry into a National Disability Support Scheme "Treat disability related to injury the same as other disabilities” Madden, Richard The draft report Disability Care and Support contains an exciting vision of improved disability support for all people with disabilities, with provision as an entitlement to every Australian based on their need for support. This vision is strongly supported. It is quite unacceptable in a prosperous and fair society, as exists in Australia in 2011, that social security and universal health insurance provide a wide set of entitlement benefits, but that people with support needs due to disability have heavily rationed benefits, and that families bear the load of support in many cases, often with no or totally inadequate assistance. The Commission’s report is a once in a generation opportunity to correct long standing injustices to people with disability and the injured, and to remove the inefficient and inequitable support and compensation systems that have grown up piecemeal over a century or more. The Commission is urged to build on its draft proposals and so provide a base for governments to grasp the opportunity provided for the complete reform that is necessary.

2011-05-01T00:00:00Z Wing Young Man, Nicola Llewellyn, Gwynnyth Wade, Catherine https://hdl.handle.net/2123/13551 2026-04-29T00:31:51Z 2014-07-01T00:00:00Z

Estimated Prevalence and Living Circumstances of Parents with Intellectual Disability In Australia from Selected National Surveys Wing Young Man, Nicola; Llewellyn, Gwynnyth; Wade, Catherine Analysis of SDAC 2009 data identified an estimated 0.41% of Australian parents had intellectual disability. This equates to an estimated 17,000 parents with intellectual disability residing in private dwellings in Australia. Analysis of GSS 2010 data revealed that, compared with non-disabled parents and also compared with parents with other disabilities, parents with intellectual disability were significantly more likely to: -be in a jobless household -be in households in the lowest three deciles of equivalised weekly income -be on government pensions as the main source of personal income -have ever been without a permanent place to live -have ever stayed in a shelter, squatted in an abandoned building and/or slept rough -have less frequent contact with family and friends -have negative or mixed feelings about life -have poorer self-assessed health

2014-07-01T00:00:00Z Llewellyn, Gwynnyth Hindmarsh, Gabrielle https://hdl.handle.net/2123/13553 2026-04-29T00:31:56Z 2015-02-26T00:00:00Z

Parents with Intellectual Disability in a Population Context Llewellyn, Gwynnyth; Hindmarsh, Gabrielle Parenting by people with intellectual disability continues to confront societal sensibilities. On the one hand, parents with intellectual disability engage in the valued social role of raising children; on the other, their parenting attracts (typically negative) attention based on an expectation of their limited capacities to parent. The literature primarily addresses the question of whether or not parents with intellectual disability can be adequate parents or reports on methods for improving their parenting skills. An emerging trend in the literature over the last decade takes a different perspective. Rather than concentrating exclusively on parents with intellectual disability, this perspective focuses on their parenting situation compared to that of other parents more generally. This paper reviews the current state of knowledge about parents and parenting with intellectual disability in this broader population context. The focus of the paper is on the use of larger scale datasets to understand the situation of parents with intellectual disability compared with other parents and to examine the contextual variables that influence their parenting. Article published as open access - the final published version can be archived in institutional or funder repositories and can be made publicly accessible immediately - http://www.springer.com/gp/open-access/authors-rights/self-archiving-policy/2124

2015-02-26T00:00:00Z Man, Nicola Wing Young Llewellyn, Gwynnyth Wade, Catherine https://hdl.handle.net/2123/13554 2026-04-29T00:31:50Z 2014-10-01T00:00:00Z

Technical Report 2, 2014: The Number and Characteristics of Parents with Intellectual Disability from Centrelink Income Support Administrative Data Man, Nicola Wing Young; Llewellyn, Gwynnyth; Wade, Catherine This report reports the situation of parents with intellectual disability compared to parents with other disabilities and non-disabled parents in a national administrative data set. Compared with other Australian parents, parents with intellectual disability were more likely to be caring for a child with disability, more likely to be in public housing and more likely to live in the Northern Territory.

2014-10-01T00:00:00Z Emerson, Eric Honey, Anne Llewellyn, Gwynnyth https://hdl.handle.net/2123/13549 2026-04-29T00:31:49Z 2013-02-01T00:00:00Z

Left Behind 2013: Monitoring the Social Inclusion of Young Australians with Self Reported Long Term Health Conditions, Impairments or Disabilities 2001-2011 Emerson, Eric; Honey, Anne; Llewellyn, Gwynnyth This report maps the extent of social inclusion or exclusion of young disabled Australians, aged between 15 and 29, over the years 2001 to 2011. It found that although the social inclusion of young disabled Australians increased on a number of key indicators, the gap between disabled and non-disabled young Australians actually increased over the 11 year period.

2013-02-01T00:00:00Z Llewellyn, Gwynnyth Emerson, Eric Madden, Ros Honey, Anne https://hdl.handle.net/2123/13548 2026-04-29T00:31:51Z 2012-01-01T00:00:00Z

The Well-being of Children with Disabilities in the Asia Pacific Region: Analysis of UNICEF MICS 3 Survey Data from Bangladesh, Lao PDR, Mongolia and Thailand Llewellyn, Gwynnyth; Emerson, Eric; Madden, Ros; Honey, Anne In this report we have used data from the third round of UNICEF’s Multiple Indicator Cluster Surveys (MICS) conducted 2005-8 to describe the relative well-being of disabled and non-disabled children in four South Asian/Pacific countries: Bangladesh, Lao PDR, Mongolia and Thailand. Indicators of well-being were extracted to address issues such as the child’s right to education, health and a standard of living adequate for the child's physical, mental, spiritual, moral and social development. Our main findings were: In all four countries children with disabilities were markedly more disadvantaged than their non-disabled peers on the majority of the indicators available. In all four countries children with disabilities were markedly more disadvantaged than their non-disabled peers on indicators relating to the child’s right to education, health and an adequate standard of living. In all four countries there were notable differences between disabled children regarding the extent of disadvantage they faced. In both Bangladesh and Lao PDR, for example, children with sensory impairments fared particularly poorly. In Thailand, by contrast, children with cognitive delay fared particularly poorly. These data are important on three counts. First, they demonstrate the viability of using simple items in population surveys to identify and characterize the well-being of disabled children. Second, they add to the limited evidence base on the well-being of children with disabilities in low and middle income countries. Third, they illustrate the importance of disaggregating disability information by type of impairment. UNICEF is working to establish a rigorous and systematic process for collecting data about children with disabilities, preferably as part of all ongoing data collections about children and young people locally, at national level and globally. This is critical to ensuring disabled children are not invisible in attempts to monitor global progress in improving the lives of children. The MICS module despite some limitations was an excellent first step in collecting data on children with disabilities as: (1) MICS is one of the main vehicles for monitoring progress toward achievement of the Millennium Development Goals;4 and (2) there is a growing consensus that achieving the Millennium Development Goals and reducing global inequalities in health and well-being will not be possible unless attention is paid to the specific situation of children with disabilities and other vulnerable groups.

2012-01-01T00:00:00Z Centre for Disability Research and Policy University of Sydney https://hdl.handle.net/2123/13547 2026-04-29T00:31:48Z 2014-04-01T00:00:00Z

Monitoring Manual and Menu (MM+M) for CBR and other Community-Based Disability Inclusive Development Programs - Manual Centre for Disability Research and Policy; University of Sydney Community-Based Rehabilitation (CBR) is a valued community development approach but there is a lack of evidence of its efficacy (World Report on Disability 2011; and more recently confirmed in the Global Disability Action Plan 2014). Monitoring is a first step to build the evidence base and assist decision-making. The Centre for Disability Research and Policy at the University of Sydney, in collaboration with CBR stakeholders from the Asia Pacific region, has produced a monitoring manual and menu (MM&M) for CBR and other community-based disability inclusive development programs. The MM&M offers these programs guidance to plan and implement locally controlled monitoring activities that empower stakeholders with information – including but not limited to people with disabilities, their families and communities.

2014-04-01T00:00:00Z Centre for Disability Research and Policy University of Sydney https://hdl.handle.net/2123/13544 2026-04-29T00:31:56Z 2014-04-01T00:00:00Z

Monitoring Manual and Menu (MM+M) for CBR and other Community-Based Disability Inclusive Development Programs - Menu Centre for Disability Research and Policy; University of Sydney Community-Based Rehabilitation (CBR) is a valued community development approach but there is a lack of evidence of its efficacy (World Report on Disability 2011; and more recently confirmed in the Global Disability Action Plan 2014). Monitoring is a first step to build the evidence base and assist decision-making. The Centre for Disability Research and Policy at the University of Sydney, in collaboration with CBR stakeholders from the Asia Pacific region, has produced a monitoring manual and menu (MM&M) for CBR and other community-based disability inclusive development programs. The MM&M offers these programs guidance to plan and implement locally controlled monitoring activities that empower stakeholders with information – including but not limited to people with disabilities, their families and communities.

2014-04-01T00:00:00Z Centre for Disability Research and Policy University of Sydney Arbeiter-Samariter-Bund Indonesia https://hdl.handle.net/2123/13543 2026-04-29T00:31:52Z 2015-06-01T00:00:00Z

Technical Report 1, 2015 Mapping of organisations in Indonesia in disaster risk reduction (MOIDRR) Centre for Disability Research and Policy; University of Sydney; Arbeiter-Samariter-Bund Indonesia This is the first Technical Report in a three part series for the two year DFAT Australian Aid funded project (2013-2015), Promoting the Inclusion of People with Disabilities in Disaster Management in Indonesia. This report details the mapping of organisations in Indonesia working in disaster risk reduction (DRR). The two year project was concerned with understanding the gaps between disability inclusive policy and practices in DRR and supporting opportunities to include people with disabilities in all phases of disaster risk management. The premise of this work was that reducing the vulnerability of people with disability during disasters is a key strategy to promote broader community resilience. The direct and practical solutions that people with disability can offer to community-level DRR activities should be a key consideration within all phases of disaster risk management. Inclusion of people with disabilities in DRR before, during, and after disasters contributes to the “whole-of-community” approach to disaster resilience advocated in contemporary policy and enacted by DRR agencies. This project was initially framed within an increasing awareness of disability inclusion in DRR globally which is now articulated in the recently issued Sendai Framework for Disaster Risk Reduction 2015-2030 (UNDISR, 2015), and within an increasingly supportive policy environment in Indonesia

2015-06-01T00:00:00Z Madden, Rosamond H Glozier, Nick Fortune, Nicola Dyson, Maree Gilroy, John Bundy, Anita Llewellyn, Gwynnyth Salvador-Carulla, Lui Lukersmith, Sue Mpofu, Elias Madden, Richard https://hdl.handle.net/2123/13546 2026-04-29T00:31:55Z 2015-05-01T00:00:00Z

In Search of an Integrative Measure of Functioning Madden, Rosamond H; Glozier, Nick; Fortune, Nicola; Dyson, Maree; Gilroy, John; Bundy, Anita; Llewellyn, Gwynnyth; Salvador-Carulla, Lui; Lukersmith, Sue; Mpofu, Elias; Madden, Richard International trends towards people-centred, integrative care and support require any measurement of functioning and disability to meet multiple aims. The information requirements of two major Australian programs for disability and rehabilitation are outlined, and the findings of two searches for suitable measures of functioning and disability are analysed. Over 30 current measures of functioning were evaluated in each search. Neither search found a generic measure of functioning suitable for these multibillion dollar programs, relevant to a wide range of people with a variety of health conditions and functioning experiences, and capable of indicating support needs, associated costs, progress and outcomes. This unsuccessful outcome has implications internationally for policy-relevant information for disability, rehabilitation and related programs. The paper outlines the features of an Integrative Measure of Functioning (IMF) based on the concepts of functioning and environmental factors in the International Classification of Functioning, Disability and Health (ICF). An IMF would be applicable across a variety of health conditions, settings and purposes, ranging from individual assessment to public health. An IMF could deliver person-centred, policy-relevant information for a range of programs, promoting harmonised language and measurement and supporting international trends in human services and public health.

2015-05-01T00:00:00Z Emerson, Eric Honey, Anne Llewellyn, Gwynnyth https://hdl.handle.net/2123/13545 2026-04-29T00:31:50Z 2013-02-01T00:00:00Z

Disability Transitions Across the Life Course: Preliminary Data from Australia Emerson, Eric; Honey, Anne; Llewellyn, Gwynnyth The aim of this working paper is to present preliminary analyses of longitudinal data from Australia that addresses various aspects of the dynamic nature of disability over time. Disability research is dominated by cross-sectional studies that have examined the prevalence and correlates of disability at a particular point in time. As a result, little is known about the duration of disability or the factors that may be associated with disability offset. This reliance on cross-sectional data has served to reinforce the notion that disability once acquired is a relatively permanent state. In recent years, the increasing availability of longitudinal data (especially from well-constructed population-based surveys) has opened up new opportunities for disability research. These have included the possibility of investigating the dynamic nature of disability over time. The data presented in this working paper are based on analysis of ten years of data collected by the study of Household Income and Labour Dynamics in Australia (HILDA). Our analyses focused on the most recent consecutive five year period in which the study participants provided information on their disability status.

2013-02-01T00:00:00Z Emerson, Eric Llewellyn, Gwynnyth https://hdl.handle.net/2123/13529 2026-04-29T00:31:56Z 2014-03-01T00:00:00Z

Left Behind 2014: Monitoring the Social Inclusion of Young Australians with Self Reported Long Term Health Conditions, Impairments or Disabilities 2001-2012 Emerson, Eric; Llewellyn, Gwynnyth The first Technical Report reporting on the time period 2001-2009, reported that disabled Australian adolescents and young adults were more likely to experience social exclusion than their non-disabled peers, and that the gap between the two actually widened between 2001 and 2011. This report provides the latest update.

2014-03-01T00:00:00Z Llewellyn, Gwynnyth Emerson, Eric Honey, Anne Kariuki, Maina https://hdl.handle.net/2123/13530 2026-04-29T00:31:58Z 2011-06-01T00:00:00Z

Left Behind 2011: Monitoring the Social Inclusion of Young Australians with Disabilities, 2001-2009 Llewellyn, Gwynnyth; Emerson, Eric; Honey, Anne; Kariuki, Maina Adolescents and young adults with disabilities are at heightened risk of social exclusion. Exclusion leads to poor outcomes in adulthood which in turn affects individuals’ health and wellbeing and that of their families and society through loss of productive engagement in their communities. Australia’s Social Inclusion Indicators Framework provides indices in domains of participation, resources and multiple and entrenched disadvantage to monitor and report on social inclusion. The Household Income and Labour Dynamics in Australia survey provides data over time on households in Australia. Using these tools we report here on the extent of social inclusion/exclusion of young disabled Australians over the past decade. Relative to their non-disabled peers, young disabled Australians are significantly less likely to do well on participation indicators. They are less likely to: -Be employed -Be fully engaged in education or work -Have attained a year 12 or equivalent education -They are more likely to: -Live in a jobless household -Experience long-term unemployment -Relative to their non-disabled peers, young disabled Australians are significantly less likely to do well on resources indicators. They are less likely to: -Feel they have someone to turn to in time of crisis -Experience autonomy -Have a voice in the community -They are more likely to: -Have low economic resources -Experience financial stress/ material deprivation -Have mental illness -Have fair or poor health -Have a lower subjective quality of life -Feel unsafe in their local community -Report being a victim of crime The standout finding is that over this decade young disabled Australians were significantly more likely than their non-disabled peers - to the extent of five times more likely - each and every year to suffer multiple disadvantage and entrenched disadvantage (the same measure over 2 consecutive years). Despite social policy interventions the aspiration for young disabled Australians to become more socially included appears even further out of reach than previously, with a widening of the gap between the life conditions of disabled and non-disabled young Australians on five critical areas: living in a jobless household, being fully engaged in work or education, low economic resources and financial stress and, most worryingly, multiple disadvantage and entrenched multiple disadvantage. In only one area did the gap narrow – on being a victim of personal crime.

2011-06-01T00:00:00Z Centre for Disability Research and Policy University of Sydney Arbeiter-Samariter-Bund Indonesia https://hdl.handle.net/2123/13531 2026-04-29T00:31:58Z 2015-06-01T00:00:00Z

The Disability Inclusive Disaster Resilience (DiDR) Tool: Development and Field Testing Centre for Disability Research and Policy; University of Sydney; Arbeiter-Samariter-Bund Indonesia This is the third Technical Report in a three part series for the two year DFAT Australian Aid funded project (2013-2015), Promoting the Inclusion of People with Disabilities in Disaster Management in Indonesia. This report details the development, refinement and field–testing of the Disability Inclusive Disaster Resilience (DiDR) tool. The purpose of the DiDR tool is to identify the resilience and capabilities of people with disabilities to natural disasters in their family and community setting. The tool is designed to be used by people with disabilities, their families or carers and thereby to promote the inclusion of people with disabilities in Disaster Risk Reduction (DRR) policy making and strategy implementation. The tool assesses the resilience of people with disabilities by bringing together four components known to be fundamental to disaster risk reduction: the individual’s functioning status, their level of participation in their communities, the physical vulnerability of their place of residence, and individual risk predictors known to influence the behaviour of the general population before, during and after a natural hazard emergency.

2015-06-01T00:00:00Z Centre for Disability Research and Policy University of Sydney Arbeiter-Samariter-Bund Indonesia https://hdl.handle.net/2123/13495 2026-04-29T00:31:52Z 2015-06-01T00:00:00Z

Practitioner Guidelines for Capacity Building for Disability Inclusive Disaster Risk Reduction in Indonesia Centre for Disability Research and Policy; University of Sydney; Arbeiter-Samariter-Bund Indonesia Disability inclusive disaster risk reduction (DiDRR) is increasingly recognised as an important component of community resilience in the event of a natural disaster as documented in the recent outcome of the 3rd World Conference, the Sendai Framework for Disaster Risk Reduction 2015-2030. Central to disability inclusive disaster risk reduction is people with disabilities themselves and their capacities to participate in, and contribute to disaster risk reduction policies, practices and programs. These Practitioner Guidelines provide orientation to the Work Packages undertaken to build the capacity of people with disabilities in disaster risk reduction in Indonesia as part of the Australian Government Department of Foreign Affairs and Trade Australian Development and Research Awards Scheme funded project, 2013-2015, Promoting the Inclusion of People with Disabilities in Disaster Management in Indonesia. These Work Packages formed one component of the project with knowledge transfer and capacity building supplemented by other methods within the project, including coaching and sponsoring participation of select trainees at key post-2015 DRR policy events.

2015-06-01T00:00:00Z Centre for Disability Research and Policy University of Sydney Arbeiter-Samariter-Bund Indonesia https://hdl.handle.net/2123/13493 2026-04-29T00:31:52Z 2015-06-01T00:00:00Z

Capacity Building for Disability Inclusive Disaster Risk Reduction in Indonesia Centre for Disability Research and Policy; University of Sydney; Arbeiter-Samariter-Bund Indonesia This Technical Report details the Capacity Building component of the Promoting the Inclusion of People with Disabilities in Disaster Management in Indonesia project. This project was funded by the Australian Government Department of Foreign Affairs and Trade Australian Development and Research Awards Scheme 2013-2015. This award scheme promotes research and development programs through collaboration between researchers in Australia and elsewhere and INGOs and NGOs in country. Relevant to capacity building, two aims of the Promoting the Inclusion of People with Disabilities in Disaster Management in Indonesia project were: 1. To increase the understanding of people with disabilities of Disaster Risk Reduction and their capacity to engage with Disaster Risk Reduction policy; and, 2. To understand and subsequently inform the knowledge base of village volunteers (Kaders subsequently referred to as cadres) and DRR administrators about DiDRR at local and national levels in Indonesia

2015-06-01T00:00:00Z Stancliffe, Roger Bigby, Christine Balandin, Susan Wilson, Nathan https://hdl.handle.net/2123/13494 2026-04-29T00:31:54Z 2013-06-01T00:00:00Z

Transition to Retirement Stancliffe, Roger; Bigby, Christine; Balandin, Susan; Wilson, Nathan This Policy Bulletin describes the implementation and evaluation of the Transition to Retirement (TTR) Program that was examined in a three-year collaborative program of applied research involving university researchers and disability service providers. The Bulletin ends with recommendations for policy and practice based on our research findings and on the practical experience of delivering the program. The TTR Program offered older people with disability the opportunity to begin to build a retirement lifestyle by joining a general community group for one day a week instead of working on that day. Thus, the program fulfils an important goal of disability policy: the social inclusion of people with disability in Australian community life. The program involved: talking to people with disability about retirement, investigating their interests, finding an appropriate community group for individuals to join, seeking and then training mentors from that group, and ensuring the people with disability were actively involved so they could contribute to the group.

2013-06-01T00:00:00Z Madden, Rosamond H Fortune, Nicola Collings, Susan Madden, Richard Blackwood, Alan https://hdl.handle.net/2123/13484 2026-04-29T00:31:57Z 2014-08-01T00:00:00Z

Cross Sector Service Coordination for People with High and Complex Needs: Harnessing Existing Evidence and Knowledge Madden, Rosamond H; Fortune, Nicola; Collings, Susan; Madden, Richard; Blackwood, Alan People with high and complex needs will generally need an array of supports to enable social and economic participation as envisaged by the National Disability Insurance Scheme (NDIS). As participants, these people will receive funding from the NDIS to purchase services and supports from a range of different disability sector providers, but will also need to access various 'mainstream’ services including health, education, housing, justice and transport in order to pursue the life they choose. The complexity of the services system, and the interfaces between sectors, create gaps and barriers that are challenging for participants, service providers and for policy makers alike to navigate. Cross-sector coordination is a critical scheme design element to ensure that NDIS participants get the range of services and supports they need to pursue their goals and participate in society and the economy. Any failure of other sectors to provide access to quality services will increase the costs of disability support and risk the sustainability of the NDIS. Coordination can thus also be seen as a way of addressing this fundamental risk facing the NDIS. For these reasons cross-sector coordination should be a core element in NDIS design. The disability field is actively discussing these challenges and this paper aims to provide evidence to inform policy directions now being developed.

2014-08-01T00:00:00Z Madden, Richard Centre for Disability Research and Policy https://hdl.handle.net/2123/13483 2026-04-29T00:31:59Z 2015-06-23T00:00:00Z

POLICY BULLETIN 3, 2014 - NATIONAL DISABILITY INSURANCE SCHEME: IMPACT ON THE COMMONWEALTH BUDGET T0 2019-20 Madden, Richard; Centre for Disability Research and Policy NDIS expenses are entirely paid by the Commonwealth, through the NDIA. Funds are provided by Commonwealth appropriation. From 1 July 2014, the Commonwealth collects the DisabilityCare Australia (DCA) levy, 0.5% of taxable income. The levy is an extension of the Medicare levy (1.5%). The DCA levy is paid into the DisabilityCare Australia Fund (DCA Fund), which is invested by the Future Fund Guardians. $825M of the DCA levy proceeds (just less than 25%) is reserved in 2014-15 to assist the States and Territories meet their NDIS obligations over time; this amount will be indexed in future years at 3.5% per annum. The Commonwealth releases this funding to the States and Territories as they meet their obligations in relation to the NDIS. The Commonwealth/State agreements provide for the States to make payments to the Commonwealth to offset the Commonwealth NDIS expenses. The Commonwealth/State agreements for initiating the NDIS provide for the States to repay a portion of their Specific Purpose Payments (SPPs) received from the Commonwealth in respect of disability, as the NDIS progressively reduces the proportion of services for people with disability that are financed through the existing arrangements. The paper gathers detail from across the 2014-15 Budget papers 1 on each of these sources of financing, over the period of the Forward Estimates (2014-15 to 2017-18) and for 2018-19 and 2019-20. It also draws on the Bilateral Agreements for NDIS Launch between the Commonwealth and various State and Territory Governments and the Heads of Agreement between the Commonwealth and the various State and Territory Governments on the National Disability Insurance Scheme. Estimates made by the Australian Government Actuary are also used.

2015-06-23T00:00:00Z Emerson, Eric Llewellyn, Gwynnyth https://hdl.handle.net/2123/13485 2026-04-29T00:31:50Z 2014-06-01T00:00:00Z

Left Behind 2014: Monitoring the Social Inclusion of Young Australians with Self-Reported Long Term Health Conditions, Impairments or Disabilities 2001-2012 Emerson, Eric; Llewellyn, Gwynnyth This Policy Bulletin is the second in an annual series reporting on the social inclusion/ exclusion of young Australians (aged between 15 and 29) with self-reported long term health conditions, impairments or disabilities. In the first Policy Bulletin – Left Behind: 2013 reporting on the time period 2001-2011, we reported that disabled Australian adolescents and young adults were more likely to experience social exclusion than their non-disabled peers, and that the gap between the two actually widened between 2001 and 2011. This Policy Bulletin updates Left Behind: 2013 by extending the mapping to the year 2012, the latest year for which data are available. Our findings address two key questions: How did the social inclusion of young Australians with disabilities compare with that of their peers in 2012? Did the gap between the social inclusion of young Australians with and without disabilities narrow or widen over the 12 year period from 2001 to 2012?

2014-06-01T00:00:00Z Llewellyn, Gwynnyth Emerson, Eric Honey, Anne https://hdl.handle.net/2123/9027 2026-04-29T00:31:49Z 2013-02-01T00:00:00Z

LEFT BEHIND: 2013 MONITORING THE SOCIAL INCLUSION OF YOUNG AUSTRALIANS WITH SELF-REPORTED LONG TERM HEALTH CONDITIONS, IMPAIRMENTS OR DISABILITIES 2001 - 2011 Llewellyn, Gwynnyth; Emerson, Eric; Honey, Anne Disabled Australian adolescents and young adults are more likely to experience social exclusion than their non-disabled peers. The gap between the two actually widened between 2001 and 2011. Social exclusion in adolescence leads to poor outcomes, such as lower educational achievement and unemployment, in adulthood. It affects not only the health and wellbeing of the individual; it also impacts on their family and the wider community. The inability of people with disabilities to participate socially and economically is a loss to the whole of society. This report maps the extent of social inclusion or exclusion of young disabled Australians, aged between 15 and 29, over the years 2001 to 2011. It found that although the social inclusion of young disabled Australians increased on a number of key indicators, the gap between disabled and non-disabled young Australians actually increased over the 11 year period. On 13 key indicators of social inclusion including employment, living in a jobless household, having support from family or friends in times of crisis and feeling safe, young disabled Australians are now more disadvantaged compared to their non-disabled peers than they were in 2001.

2013-02-01T00:00:00Z Llewellyn, Gwynnyth Emerson, Eric Honey, Anne Kariuki, Maina https://hdl.handle.net/2123/9026 2026-04-29T00:31:58Z 2013-04-10T00:00:00Z

LEFT BEHIND: MONITORING THE SOCIAL INCLUSION OF YOUNG AUSTRALIANS WITH SELF- REPORTED LONG TERM HEALTH CONDITIONS, IMPAIRMENTS OR DISABILITIES 2001 - 2009 Llewellyn, Gwynnyth; Emerson, Eric; Honey, Anne; Kariuki, Maina Adolescents and young adults with disabilities are at heightened risk of social exclusion. Exclusion leads to poor outcomes in adulthood which in turn affects individuals’ health and wellbeing and that of their families and society through loss of productive engagement in their communities. Australia’s Social Inclusion Indicators Framework provides indices in domains of participation, resources and multiple and entrenched disadvantage to monitor and report on social inclusion. The Household Income and Labour Dynamics in Australia survey provides data over time on households in Australia. Using these tools we report here on the extent of social inclusion/exclusion of young disabled Australians over the past decade. Relative to their non-disabled peers, young disabled Australians are significantly less likely to do well on participation indicators.

2013-04-10T00:00:00Z