• Advance care planning in chronic kidney disease: a survey of current practice in Australia 

      Luckett, Tim; Spencer, Lucy; Pollock, Carol A; Lam, Lawrence; Silvester, William; Sellars, Marcus; Detering, Karen M; Butow, Phyllis N; Tong, Allison; Clayton, Josephine M
      Published 2016-02-16
      Aim: Advance care planning (ACP) in nephrology is widely advocated but not always implemented. The aims of this study were to describe current ACP practice and identify barriers/facilitators and perceived need for health ...
      Open Access
      Article
    • Comparative Survival and Economic Benefits of Deceased Donor Kidney Transplantation and Dialysis in People with Varying Ages and Co-Morbidities 

      Wong, Germaine; Howard, Kirsten; Chapman, Jeremy R.; Chadban, Steven; Cross, Nicholas; Tong, Allison; Webster, Angela C; Craig, Jonathan C
      Published 2012-01-18
      Background Deceased donor kidneys for transplantation are in most countries allocated preferentially to recipients who have limited co-morbidities. Little is known about the incremental health and economic gain from ...
      Open Access
      Article
    • Core Outcomes Set for Trials in People With Coronavirus Disease 2019. 

      Tong, Allison; Elliott, Julian H; Azevedo, Luciano Cesar; Baumgart, Amanda; Bersten, Andrew; Cervantes, Lilia; Chew, Derek P; Cho, Yeoungjee; Cooper, Tess; Crowe, Sally; Douglas, Ivor S; Evangelidis, Nicole; Flemyng, Ella; Hannan, Elyssa; Horby, Peter; Howell, Martin; Lee, Jaehee; Liu, Emma; Lorca, Eduardo; Lynch, Deena; Marshall, John C; Matus Gonzalez, Andrea; McKenzie, Anne; Manera, Karine E; McLeod, Charlie; Mehta, Sangeeta; Mer, Mervyn; Conway Morris, Andrew; Nseir, Saad; Povoa, Pedro; Reid, Mark; Sakr, Yasser; Shen, Ning; Smyth, Alan R; Snelling, Tom; Strippoli, Giovanni Fm; Teixeira-Pinto, Armando; Torres, Antoni; Turner, Tari; Viecelli, Andrea K; Webb, Steve; Williamson, Paula R; Woc-Colburn, Laila; Zhang, Junhua; Craig, Jonathan C
      Published 2020-01-01
      OBJECTIVES: The outcomes reported in trials in coronavirus disease 2019 are extremely heterogeneous and of uncertain patient relevance, limiting their applicability for clinical decision-making. The aim of this workshop ...
      Article
    • Diagnosis, monitoring and treatment of systemic lupus erythematosus: a systematic review of clinical practice guidelines. 

      Tunnicliffe, David J; Singh-Grewal, Davinder; Kim, Siah; Craig, Jonathan C; Tong, Allison
      Published 2015-10-01
      Objectives: Management of SLE is complex and variability in practices exists. Guidelines have been developed to help improve the management of SLE patients but there has been no formal evaluation of these guidelines. This ...
      Open Access
      Article
    • Economic considerations of patients and caregivers in choosing a dialysis modality 

      Walker, Rachael C; Howard, Kirsten; Tong, Allison; Palmer, Suetonia C; Marshall, Mark R; Morton, Rachael L
      Published 2016-05-01
      Introduction Broader adoption of home dialysis could lead to considerable cost savings for health services. Globally, however, uptake remains low. The aim of this study was to describe patient and caregiver perspectives ...
      Open Access
      Article
    • eHealth interventions for people with chronic kidney disease 

      Stevenson, Jessica K; Campbell, Zoe C; Webster, Angela C; Chow, Clara K; Tong, Allison; Craig, Jonathan C; Campbell, Katrina L; Lee, Vincent WS
      Published 2019-08-06
      Background Chronic kidney disease (CKD) is associated with high morbidity and death, which increases as CKD progresses to end‐stage kidney disease (ESKD). There has been increasing interest in developing innovative, ...
      Open Access
      Article
    • Evaluation of the Cochrane Consumers and Communication Group's systematic review priority-setting project 

      Synnot, Anneliese; Tong, Allison; Ryan, Rebecca; Hill, Sophie
      Published 2020-01-01
      BACKGROUND: Health researchers and funders are increasingly consulting with stakeholders to set their research agendas but these activities are rarely evaluated. The Cochrane Consumers and Communication Group (CCCG) conducted ...
      Article
    • Healthcare and research priorities of adolescents and young adults with systemic lupus erythematosus: a mixed-methods study 

      Tunnicliffe, David J; Singh-Grewal, Davinder; Craig, Jonathan C; Howell, Martin; Tugwell, Peter; Mackie, Fiona; Lin, Ming-Wei; O’Neill, Sean G; Ralph, Angelique F; Tong, Allison
      Published 2017-04-01
      Objectives: Managing juvenile-onset systemic lupus erythematosus (SLE) is particularly challenging. The disease may be severe, adolescent patients have complex medical and psychosocial needs, and they must navigate the ...
      Open Access
      Article
    • International Survey to Establish Prioritized Outcomes for Trials in People With Coronavirus Disease 2019. 

      Evangelidis, Nicole; Tong, Allison; Howell, Martin; Teixeira-Pinto, Armando; Elliott, Julian H; Azevedo, Luciano Cesar; Bersten, Andrew; Cervantes, Lilia; Chew, Derek P; Crowe, Sally; Douglas, Ivor S; Flemyng, Ella; Horby, Peter; Lee, Jaehee; Lorca, Eduardo; Lynch, Deena; Marshall, John C; McKenzie, Anne; Mehta, Sangeeta; Mer, Mervyn; Conway Morris, Andrew; Nseir, Saad; Povoa, Pedro; Reid, Mark; Sakr, Yasser; Shen, Ning; Smyth, Alan R; Snelling, Tom; Strippoli, Giovanni F M; Torres, Antoni; Turner, Tari; Webb, Steve; Williamson, Paula R; Woc-Colburn, Laila; Zhang, Junhua; Baumgart, Amanda; Cabrera, Sebastian; Cho, Yeoungjee; Cooper, Tess; Guha, Chandana; Liu, Emma; Gonzalez, Andrea Matus; McLeod, Charlie; Natale, Patrizia; Saglimbene, Valeria; Viecelli, Andrea K; Craig, Jonathan C
      Published 2020-01-01
      OBJECTIVES: There are over 4,000 trials conducted in people with coronavirus disease 2019. However, the variability of outcomes and the omission of patient-centered outcomes may diminish the impact of these trials on ...
      Article
    • “Lupus means sacrifices” – the perspectives of adolescents and young adults with systemic lupus erythematosus. 

      Tunnicliffe, David J; Singh-Grewal, Davinder; Chaitow, Jeffrey; Mackie, Fiona; Manolios, Nicholas; Lin, Ming-Wei; O'Neill, Sean G; Ralph, Angelique F; Craig, Jonathan; Tong, Allison
      Published 2016-06-01
      Background: Disease activity, organ damage and treatment burden are often substantial in children and adolescents with systemic lupus erythematous (SLE), and the complex interplay among the developing child, their parents, ...
      Open Access
      Article
    • Research priorities in chronic kidney disease for Australia: Report of a conference 

      Tong, Allison; Crowe, Sally; Chando, Shingisai; Cass, Alan; Chadban, Steve J; Chapman, Jeremy R; Gallagher, Martin; Hawley, Carmel M; Hill, Sophie; Howard, Kirsten; Johnson, David W; Kerr, Peter G; McKenzie, Anne; Parker, David; Perkovic, Vlado; Polkinghorne, Kevan R; Pollock, Carol; Strippoli, Giovanni FM; Tugwell, Peter; Walker, Rowan G; Webster, Angela C; Wong, Germaine; Craig, Jonathan C
      Published 2015-05-03
      Research aims to improve health outcomes for patients. However, the setting of research priorities is usually performed by clinicians, academics, and funders, with little involvement of patients or caregivers and using ...
      Open Access
      Article
    • Suspension and resumption of kidney transplant programs during the COVID‐19 pandemic: perspectives from patients, caregivers and potential living donors‐a qualitative study 

      Guha, Chandana; Tong, Allison; Baumgart, Amanda; Scholes-Robertson, Nicole; Isbel, Nicole; Kanellis, John; Campbell, Scott; Coates, Toby; Chadban, Steven
      Published 2020-01-01
      Background: Many countries have suspended kidney transplantation programs during the COVID‐19 pandemic because of concerns for patient safety and the shortage of healthcare resources. This study aimed to describe patient, ...
      Article
    • Test performance of faecal occult blood testing for the detection of bowel cancer in people with chronic kidney disease (DETECT) protocol 

      Wong, Germaine; Howard, Kirsten; Chapman, Jeremy R; Tong, Allison; Bourke, Michael J; Hayen, Andrew; Macaskill, Petra; Hope, Richard L; Williams, Narelle; Kieu, Anh; Allen, Richard; Chadban, Steven; Pollock, Carol; Webster, Angela C; Roger, Simon D; Craig, Jonathan C
      Published 2011-06-29
      Background: Cancer is a major cause of mortality and morbidity in patients with chronic kidney disease (CKD). In patients without kidney disease, screening is a major strategy for reducing the risk of cancer and improving ...
      Open Access
      Article
    • Towards consumer-centred health care and health research in nephrology: understanding patient and family caregiver experiences and perspectives in chronic kidney disease 

      Tong, Allison
      Published 2008-07-25
      Healthcare services and health research aim to improve the physical and psychosocial well being of consumers, and to offer responsive services needed and valued by them. Research in chronic kidney disease (CKD) has ...
      Open Access
      PhD Doctorate