• 1454Renal disease in Aboriginal children and young adults (ARDAC): evolution to a data linkage study 

      Stephens, Jacqueline; Sinka, Victoria; Kerr, Marianne; Dickson, Michelle; Teixeira-Pinto, Armando; Wong, Germaine; Howell, Martin; Alexander, Stephen; Tong, Allison; Craig, Jonathan
      Published 2021
      Abstract Focus of Presentation The 'Antecedents of Renal Disease in Aboriginal Children and Young Adults' (ARDAC) Study was the first large population-based longitudinal cohort study seeking to identify the early emergence ...
      Article
    • Advance care planning in chronic kidney disease: a survey of current practice in Australia 

      Luckett, Tim; Spencer, Lucy; Pollock, Carol A; Lam, Lawrence; Silvester, William; Sellars, Marcus; Detering, Karen M; Butow, Phyllis N; Tong, Allison; Clayton, Josephine M
      Published 2016-02-16
      Aim: Advance care planning (ACP) in nephrology is widely advocated but not always implemented. The aims of this study were to describe current ACP practice and identify barriers/facilitators and perceived need for health ...
      Open Access
      Article
    • Chapter 10 Novel treatments and trials in COVID-19 

      Morris, Andrew Conway; Tong, Allison
      Published 2022
      Coronavirus disease 2019 (COVID-19), the disease arising from the beta coronavirus severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2), has presented a major challenge to health-care systems and societies across ...
      Book chapter
    • Comparative Survival and Economic Benefits of Deceased Donor Kidney Transplantation and Dialysis in People with Varying Ages and Co-Morbidities 

      Wong, Germaine; Howard, Kirsten; Chapman, Jeremy R.; Chadban, Steven; Cross, Nicholas; Tong, Allison; Webster, Angela C; Craig, Jonathan C
      Published 2012-01-18
      Background Deceased donor kidneys for transplantation are in most countries allocated preferentially to recipients who have limited co-morbidities. Little is known about the incremental health and economic gain from ...
      Open Access
      Article
    • Core Outcome Measures for Trials in People With Coronavirus Disease 2019: Respiratory Failure, Multiorgan Failure, Shortness of Breath, and Recovery. 

      Tong, Allison; Baumgart, Amanda; Evangelidis, Nicole; Viecelli, Andrea K; Carter, Simon A; Azevedo, Luciano Cesar; Cooper, Tess; Bersten, Andrew; Cervantes, Lilia; Chew, Derek P; Crowe, Sally; Douglas, Ivor S; Flemyng, Ella; Elliott, Julian H; Hannan, Elyssa; Horby, Peter; Howell, Martin; Ju, Angela; Lee, Jaehee; Lorca, Eduardo; Lynch, Deena; Manera, Karine E; Marshall, John C; Gonzalez, Andrea Matus; McKenzie, Anne; Mehta, Sangeeta; Mer, Mervyn; Morris, Andrew Conway; Needham, Dale M; Nseir, Saad; Povoa, Pedro; Reid, Mark; Sakr, Yasser; Shen, Ning; Smyth, Alan R; Simpson, A John; Snelling, Tom; Strippoli, Giovanni F M; Teixeira-Pinto, Armando; Torres, Antoni; Turner, Tari; Webb, Steve; Williamson, Paula R; Woc-Colburn, Laila; Zhang, Junhua; Craig, Jonathan C
      Published 2021
      OBJECTIVES: Respiratory failure, multiple organ failure, shortness of breath, recovery, and mortality have been identified as critically important core outcomes by more than 9300 patients, health professionals, and the ...
      Article
    • Core Outcomes Set for Trials in People With Coronavirus Disease 2019. 

      Tong, Allison; Elliott, Julian H; Azevedo, Luciano Cesar; Baumgart, Amanda; Bersten, Andrew; Cervantes, Lilia; Chew, Derek P; Cho, Yeoungjee; Cooper, Tess; Crowe, Sally; Douglas, Ivor S; Evangelidis, Nicole; Flemyng, Ella; Hannan, Elyssa; Horby, Peter; Howell, Martin; Lee, Jaehee; Liu, Emma; Lorca, Eduardo; Lynch, Deena; Marshall, John C; Matus Gonzalez, Andrea; McKenzie, Anne; Manera, Karine E; McLeod, Charlie; Mehta, Sangeeta; Mer, Mervyn; Conway Morris, Andrew; Nseir, Saad; Povoa, Pedro; Reid, Mark; Sakr, Yasser; Shen, Ning; Smyth, Alan R; Snelling, Tom; Strippoli, Giovanni Fm; Teixeira-Pinto, Armando; Torres, Antoni; Turner, Tari; Viecelli, Andrea K; Webb, Steve; Williamson, Paula R; Woc-Colburn, Laila; Zhang, Junhua; Craig, Jonathan C
      Published 2020
      OBJECTIVES: The outcomes reported in trials in coronavirus disease 2019 are extremely heterogeneous and of uncertain patient relevance, limiting their applicability for clinical decision-making. The aim of this workshop ...
      Article
    • Costs and outcomes of advance care planning and end-of-life care for older adults with endstage kidney disease: A person-centred decision analysis 

      Sellars, Marcus; Clayton, Josephine M.; Detering, Karen M.; Tong, Allison; Power, David; Morton, Rachael L.
      Published 2019
      Background Economic evaluations of advance care planning (ACP) in people with chronic kidney disease are scarce. However, past studies suggest ACP may reduce healthcare costs in other settings. We aimed to examine hospital ...
      Open Access
      Article
    • Diagnosis, monitoring and treatment of systemic lupus erythematosus: a systematic review of clinical practice guidelines. 

      Tunnicliffe, David J; Singh-Grewal, Davinder; Kim, Siah; Craig, Jonathan C; Tong, Allison
      Published 2015-10-01
      Objectives: Management of SLE is complex and variability in practices exists. Guidelines have been developed to help improve the management of SLE patients but there has been no formal evaluation of these guidelines. This ...
      Open Access
      Article
    • Economic considerations of patients and caregivers in choosing a dialysis modality 

      Walker, Rachael C; Howard, Kirsten; Tong, Allison; Palmer, Suetonia C; Marshall, Mark R; Morton, Rachael L
      Published 2016-05-01
      Introduction Broader adoption of home dialysis could lead to considerable cost savings for health services. Globally, however, uptake remains low. The aim of this study was to describe patient and caregiver perspectives ...
      Open Access
      Article
    • eHealth interventions for people with chronic kidney disease 

      Stevenson, Jessica K; Campbell, Zoe C; Webster, Angela C; Chow, Clara K; Tong, Allison; Craig, Jonathan C; Campbell, Katrina L; Lee, Vincent WS
      Published 2019-08-06
      Background Chronic kidney disease (CKD) is associated with high morbidity and death, which increases as CKD progresses to end‐stage kidney disease (ESKD). There has been increasing interest in developing innovative, ...
      Open Access
      Article
    • Evaluation of the Cochrane Consumers and Communication Group's systematic review priority-setting project 

      Synnot, Anneliese; Tong, Allison; Ryan, Rebecca; Hill, Sophie
      Published 2020
      BACKGROUND: Health researchers and funders are increasingly consulting with stakeholders to set their research agendas but these activities are rarely evaluated. The Cochrane Consumers and Communication Group (CCCG) conducted ...
      Article
    • Experiences of Latinx Individuals Hospitalized for COVID-19: A Qualitative Study 

      Cervantes, Lilia; Martin, Marlene; Frank, Maria G.; Farfan, Julia F.; Kearns, Mark; Rubio, Luis A.; Tong, Allison; Gonzalez, Andrea Matus; Camacho, Claudia; Collings, Adriana; Mundo, William; Powe, Neil R.; Fernandez, Alicia
      Published 2021
      Importance Latinx individuals, particularly immigrants, are at higher risk than non-Latinx White individuals of contracting and dying from coronavirus disease 2019 (COVID-19). Little is known about Latinx experiences with ...
      Article
    • Feasibility and acceptability of ePROMs data capture and feedback among patients receiving haemodialysis in the Symptom monitoring WIth Feedback Trial (SWIFT) pilot: protocol for a qualitative study in Australia 

      Duncanson, Emily; Bennett, Paul N.; Viecelli, Andrea; Dansie, Kathryn; Handke, William; Tong, Allison; Palmer, Suetonia; Jesudason, Shilpanjali; McDonald, Stephen P.; Morton, Rachael L.
      Published 2020
      Introduction People receiving haemodialysis experience a high symptom burden and impaired quality of life. The use of patient-reported outcome measures (PROMs) is increasing in nephrology care, however their acceptability, ...
      Open Access
      Article
    • Frontline interdisciplinary clinician perspectives on caring for patients with COVID-19: a qualitative study. 

      Rao, Hassan; Mancini, Diana; Tong, Allison; Khan, Humaira; Santacruz Gutierrez, Brissa; Mundo, William; Collings, Adriana; Cervantes, Lilia
      Published 2021
      OBJECTIVE: To describe the drivers of distress and motivations faced by interdisciplinary clinicians who were on the frontline caring for patients with COVID-19. DESIGN: 50 semistructured interviews. Transcripts were ...
      Article
    • Healthcare and research priorities of adolescents and young adults with systemic lupus erythematosus: a mixed-methods study 

      Tunnicliffe, David J; Singh-Grewal, Davinder; Craig, Jonathan C; Howell, Martin; Tugwell, Peter; Mackie, Fiona; Lin, Ming-Wei; O’Neill, Sean G; Ralph, Angelique F; Tong, Allison
      Published 2017-04-01
      Objectives: Managing juvenile-onset systemic lupus erythematosus (SLE) is particularly challenging. The disease may be severe, adolescent patients have complex medical and psychosocial needs, and they must navigate the ...
      Open Access
      Article
    • Incidence and Outcomes of COVID-19 in People With CKD: A Systematic Review and Meta-analysis 

      Chung, Edmund Ym; Palmer, Suetonia C; Natale, Patrizia; Krishnan, Anoushka; Cooper, Tess E; Saglimbene, Valeria M; Ruospo, Marinella; Au, Eric; Jayanti, Sumedh; Liang, Amy; Deng, Danny Jia Jie; Chui, Juanita; Higgins, Gail Y; Tong, Allison; Wong, Germaine; Teixeira-Pinto, Armando; Hodson, Elisabeth M; Craig, Jonathan C; Strippoli, Giovanni Fm
      Published 2021
      RATIONALE & OBJECTIVE: Coronavirus disease 2019 (COVID-19) disproportionately affects people with chronic diseases such as chronic kidney disease (CKD). We assessed the incidence and outcomes of COVID-19 in people with ...
      Article
    • International Survey to Establish Prioritized Outcomes for Trials in People With Coronavirus Disease 2019. 

      Evangelidis, Nicole; Tong, Allison; Howell, Martin; Teixeira-Pinto, Armando; Elliott, Julian H; Azevedo, Luciano Cesar; Bersten, Andrew; Cervantes, Lilia; Chew, Derek P; Crowe, Sally; Douglas, Ivor S; Flemyng, Ella; Horby, Peter; Lee, Jaehee; Lorca, Eduardo; Lynch, Deena; Marshall, John C; McKenzie, Anne; Mehta, Sangeeta; Mer, Mervyn; Conway Morris, Andrew; Nseir, Saad; Povoa, Pedro; Reid, Mark; Sakr, Yasser; Shen, Ning; Smyth, Alan R; Snelling, Tom; Strippoli, Giovanni F M; Torres, Antoni; Turner, Tari; Webb, Steve; Williamson, Paula R; Woc-Colburn, Laila; Zhang, Junhua; Baumgart, Amanda; Cabrera, Sebastian; Cho, Yeoungjee; Cooper, Tess; Guha, Chandana; Liu, Emma; Gonzalez, Andrea Matus; McLeod, Charlie; Natale, Patrizia; Saglimbene, Valeria; Viecelli, Andrea K; Craig, Jonathan C
      Published 2020
      OBJECTIVES: There are over 4,000 trials conducted in people with coronavirus disease 2019. However, the variability of outcomes and the omission of patient-centered outcomes may diminish the impact of these trials on ...
      Article
    • Kidney transplant recipient perspectives on telehealth during the COVID-19 pandemic. 

      Huuskes, Brooke M; Scholes-Robertson, Nicole; Guha, Chandana; Baumgart, Amanda; Wong, Germaine; Kanellis, John; Chadban, Steve; Barraclough, Katherine A; Viecelli, Andrea K; Hawley, Carmel M; Kerr, Peter G; Coates, P Toby; Amir, Noa; Tong, Allison
      Published 2021
      Background The COVID-19 pandemic has challenged the delivery of health services. Telehealth allows delivery of care without in-person contacts and minimizes the risk of vial transmission. We aimed to describe the perspectives ...
      Article
    • “Lupus means sacrifices” – the perspectives of adolescents and young adults with systemic lupus erythematosus. 

      Tunnicliffe, David J; Singh-Grewal, Davinder; Chaitow, Jeffrey; Mackie, Fiona; Manolios, Nicholas; Lin, Ming-Wei; O'Neill, Sean G; Ralph, Angelique F; Craig, Jonathan; Tong, Allison
      Published 2016-06-01
      Background: Disease activity, organ damage and treatment burden are often substantial in children and adolescents with systemic lupus erythematous (SLE), and the complex interplay among the developing child, their parents, ...
      Open Access
      Article
    • Māori patients’ experiences and perspectives of chronic kidney disease: a New Zealand qualitative interview study 

      Walker, Rachael C.; Walker, Shayne; Morton, Rachael L.; Tong, Allison; Howard, Kirsten; Palmer, Suetonia
      Published 2017
      Objectives To explore and describe Māori (the indigenous people of New Zealand) patients' experiences and perspectives of chronic kidney disease (CKD), as these are largely unknown for indigenous groups with CKD. Design ...
      Open Access
      Article